I've had it for well over 2 years now. I tell everyone it's my worst symptom because I am semi-nauseaus just about all the time and hardly ever have a hearty appetite. I've been force feeding myself (especially lunch) for years now. There are two things that eleviate it. One we've talked about before is MJ and I know you have other issues with that. I only do that in the later evening now because while it helps that significantly, it now seems to zap leg strength. The other is what WW said; exercise and also vestibular exercises. My neuro. told me about those. If you have a good sized bed, sit on the end of the bed in the middle, pick out a spot on the wall. Keep focused on it and allow yourself, or force yourself, to fall to the left and to the right while keeping focused on the spot on the wall. I have no earthly idea why this helps, but I don't know why exercise does either. I even had vertigo when I was still able to run, and if you can run, that was the best. I would be ready to vom., and if I took a run, it would stay gone for usually the rest of the evening. I can still make myself sweat on the bowflex doing upper body workouts now and, as WW said, exercise works for it. God knows why, but it does. It's almost like you push yourself 'past it'. Also a low dose of diazepam (not enough to make you tired) like 2mg sometimes helps me too. Believe it or not, you can sort of get used to it over time, but there are still times when I have to shut out the lights, put the fan on me and close my eyes or I'll get sick. I hate it, but what are we gonna do?
I tried Antivert (meclizine), but it was like taking a Benadryl; I couldn't keep my damn eyes open. It works, but I think it just knocks your ass out. I still have like 20 of my original Rx of 30 and I got them like 3 years ago. If you can tolerate Antivert, give it a try, but it knocked me out.