Robbie, I'm wondering if you got your pulse, how do you feel, I hope you got the results of your dreams....
I've droped now to about 30mgs per week, it hurts like heck, it's torture getting of daily x 15 or so years...ARGH
It's such a little pill, it right in my purse, and it will make me feel so good...
prednisone
Down to 40mg a day now and the thing that has been affected the most is the spasticity in my legs.transfering from chair to chair or chair to toilet is not so bad. I can straiten my legs without them going into convulsions, it’s nice. The cost benefit ratio of this little white pill is great, wish i could just stay on it.
Had ms for 28 yrs,
8.5 EDSS
SPMS, 54 yrs old
Taking it day by day
8.5 EDSS
SPMS, 54 yrs old
Taking it day by day
- CureOrBust
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- Location: Sydney, Australia
I have continued with my 3 days of a monthly pulse of 75mg/day.
I am not as affected by MS as robbie, and do not notice the changes as distinctly. But I definitely do notice a difference. I am limiting myself to three days, with no taper, as I have found this works best for me during a relapse. ie Bang for mg of steroids.
I have been very lucky, as for the last six months I have been working from home mostly, and therefore have managed to stay away from the festering petulance that is spread in an office environment. A cold/flu is my only known trigger for a relapse, so by avoiding an infection, I have also avoided having a relapse for the past six months (I think).
I am not as affected by MS as robbie, and do not notice the changes as distinctly. But I definitely do notice a difference. I am limiting myself to three days, with no taper, as I have found this works best for me during a relapse. ie Bang for mg of steroids.
I have been very lucky, as for the last six months I have been working from home mostly, and therefore have managed to stay away from the festering petulance that is spread in an office environment. A cold/flu is my only known trigger for a relapse, so by avoiding an infection, I have also avoided having a relapse for the past six months (I think).
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