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PostPosted: Fri May 15, 2009 5:41 pm 
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Location: Chicagoland
Robbie, I'm wondering if you got your pulse, how do you feel, I hope you got the results of your dreams....
I've droped now to about 30mgs per week, it hurts like heck, it's torture getting of daily x 15 or so years...ARGH
It's such a little pill, it right in my purse, and it will make me feel so good...


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PostPosted: Fri Jul 03, 2009 7:06 am 
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Location: Northern Ontario, Canada
Just started my pulse today, the next month or so will be heaven.

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Had ms for over 19 years now.


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PostPosted: Fri Jul 03, 2009 7:15 am 
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YEAH YOU!

how mauch are they giving you, and over how long?


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PostPosted: Fri Jul 03, 2009 7:18 am 
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Last edited by Lyon on Sat Nov 26, 2011 11:38 am, edited 1 time in total.

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PostPosted: Tue Jul 14, 2009 7:51 am 
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Down to 40mg a day now and the thing that has been affected the most is the spasticity in my legs.transfering from chair to chair or chair to toilet is not so bad. I can straiten my legs without them going into convulsions, it’s nice. The cost benefit ratio of this little white pill is great, wish i could just stay on it.

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PostPosted: Wed Jul 15, 2009 2:57 am 
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Location: Sydney, Australia
I have continued with my 3 days of a monthly pulse of 75mg/day.

I am not as affected by MS as robbie, and do not notice the changes as distinctly. But I definitely do notice a difference. I am limiting myself to three days, with no taper, as I have found this works best for me during a relapse. ie Bang for mg of steroids.

I have been very lucky, as for the last six months I have been working from home mostly, and therefore have managed to stay away from the festering petulance that is spread in an office environment. A cold/flu is my only known trigger for a relapse, so by avoiding an infection, I have also avoided having a relapse for the past six months (I think).


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PostPosted: Mon Jul 20, 2009 9:12 am 
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Got some more prednisone from a friend so I will try staying on 30mg a day till it runs out and see how I feel.

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