prednisone

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Postby gwa » Thu Sep 18, 2008 3:20 pm

Loobie wrote: I hope it works for me. Any time would be a blessing.


Hope it works for you. Good luck.

gwa
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Postby Loobie » Thu Sep 18, 2008 4:39 pm

Thank you. I truly hope it does. I'm getting crazy here lately.
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Postby Loobie » Thu Sep 18, 2008 4:40 pm

Oh, and by the way Robbie, I hope you get a free bowl of soup with that hat...............Looks good on you though!
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Postby robbie » Fri Sep 19, 2008 5:55 am

Image
This has been a week of heaven for me it’s hard to know there’s a drug out there that can make me feel so good but you can’t stay on it, prednisone has always worked in the past but it seems even better this time, maybe the worse of you are the more you notice it, not just my eyes but everything. Best 15 bucks I ever spent.
Had ms for over 19 years now.
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Postby Loobie » Fri Sep 19, 2008 7:57 am

Glad to hear it dude. My neuro's office has not called me yet today to let me know when I start my course, but I hope I get some of those same results!
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Postby gwa » Fri Sep 19, 2008 8:34 am

robbie wrote:Image
This has been a week of heaven for me it’s hard to know there’s a drug out there that can make me feel so good but you can’t stay on it, prednisone has always worked in the past but it seems even better this time, maybe the worse of you are the more you notice it, not just my eyes but everything. Best 15 bucks I ever spent.


It is great that the med is helping you. It is a real pain to have an issue and not be able to do anything about it, so am glad you found help.

The Canadian geese haven't arrived here yet, but I expect them soon.

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Postby robbie » Wed Sep 24, 2008 10:10 am

Saw my neuro today and explained the best I could how amazing I have felt on the prednisone, she said she hears it allot from mostly people with spms, because of it’s ability to reduce spasticity. But obviously you can’t have it all the time but it’s just been heaven for a while.
Had ms for over 19 years now.
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Postby Loobie » Wed Sep 24, 2008 10:41 am

Good to hear man. I just got done with my second infusion. I didn't sleep very well, but when I did wake up this morning, my knee didn't feel like there were nails in it and I'm walking much better today.

Robbie,

Do you taper after 3 days of 1000mg IV, or do you just quit cold turkey. The last time I took these, I didn't taper and nothing happened, but that was like 7 years ago and I didn't have MS that bad at that time.
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Postby robbie » Wed Sep 24, 2008 1:42 pm

hey lew i have only had the iv steroids once this is just oral prednisone, 60 mg for 7 days then taper every 3 days by 10mg until their done.
Had ms for over 19 years now.
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Postby cheerleader » Wed Sep 24, 2008 1:49 pm

Lew...
Glad to hear the steroids are giving some relief. Jeff had the IV with his first flare, 1000mg like you- for 3 days, then he did the oral taper for another 3 days. I think that's pretty typical protocol in the states. Jeff went from hobbling around and not feeling anything in his left arm and leg, to regaining 90% function pre-attack. It was like a miracle drug in my eyes...
I'm glad you and Rob are getting some much-deserved help.
AC
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby robbie » Sun Sep 28, 2008 12:27 pm

I’m coming down real good now from prednisone, spasms are back to full strength now which I notice the most. When I think of how good I felt two weeks ago I will be even harder to feel so shitty. There has been so many times throughout my 16 years that the ms has been good then bad, good then bad I am more use to it and know more of what to expect but it’s still so hard to realize the big picture.It's a relief to know prednisone is out there and look forward to taking it as often as I can regardless of how bad it is for you.
Had ms for over 19 years now.
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Postby gwa » Sun Sep 28, 2008 1:53 pm

robbie wrote:I’m coming down real good now from prednisone, spasms are back to full strength now which I notice the most. When I think of how good I felt two weeks ago I will be even harder to feel so shitty. There has been so many times throughout my 16 years that the ms has been good then bad, good then bad I am more use to it and know more of what to expect but it’s still so hard to realize the big picture.It's a relief to know prednisone is out there and look forward to taking it as often as I can regardless of how bad it is for you.


How long did the med help you? It seems like it didn't help for long. I have never taken it and have no experience to contribute. When I was relapsing, I always was put on ACTH, which must have been a "Dark Ages" med.

I really had hoped it would help your spasms.

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Postby Loobie » Sun Sep 28, 2008 2:01 pm

I'm going to ask about the oral. I just did the 1000mg for three days IV. I feel awful now that the effects have worn off. Worse than before. I'm bumming big time.
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Postby robbie » Sun Sep 28, 2008 2:14 pm

How long did the med help you? It seems like it didn't help for long. I have never taken it and have no experience to contribute. When I was relapsing, I always was put on ACTH, which must have been a "Dark Ages" med.

I really had hoped it would help your spasms.

gwa

about 3 weeks gwa it is just unbelievable how it helped my spasms but not just that it made everything feel better, it was a very short vacation from ms, but i will take what i can get, i felt euphoric.
Had ms for over 19 years now.
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Postby Lyon » Sun Sep 28, 2008 5:57 pm

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Last edited by Lyon on Sun Nov 27, 2011 12:40 pm, edited 2 times in total.
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