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3) Oral prednisone, [b]500–1250 mg/day[/b], divided, for 3–7 days (for relapses)
If you don't mind me asking, how long were you on at 60mg/day? How long on taper? and how long before you noticed the symptoms returning?robbie wrote:I’m coming down real good now from prednisone, spasms are back to full strength now which I notice the most. When I think of how good I felt two weeks ago...
If you don't mind me asking, how long were you on at 60mg/day? How long on taper? and how long before you noticed the symptoms returning?
So, if I am understanding, your symptoms started to return, during the taper? when you dropped below about 40mg?robbie wrote:i just finished and my symptoms are mostly back, the first two weeks were the best.
When do you *think* you peaked on improvements? or did the improvements continue, until you started the taper, and then the symptoms started to return?
robbie wrote:I went to see my neuro at day 9 of prednisone and although she could see how good I was feeling and how up I was she made sure I understood that this was not helping my ms at all other than dramatically reducing my spasticity which brings on the good feeling I was experiencing. She said she only gives it for exacerbations(my double vision) but knows how good it can make people feel. She said it won’t have the same affect if you take it all the time at a lower dose plus it can be very hard on you. I asked her about pulsing a higher dose maybe 3 or 4 times a year just to give me something to look forward to, so will see this is just a way to feel better it can do nothing to help the actual ms.
Are you saying, that at this point in time, you have ended up slightly better than before the steroid pulse?robbie wrote:...but not as bad i still don't feel as bad. it is really hard to explain the way i felt.
Correct me if I am wrong, but I was thinking your interest in steroids was like mine, based on the research that found long term pulses in SPMS left some patients with highly reduced EDSS scores?robbie wrote:She said it won’t have the same affect if you take it all the time at a lower dose plus it can be very hard on you.
I went for around 10years misdiagnosed with CIDP, which has a first line treatment of oral prednisone. As such I have a long history of using them regularly. I found, from personal experience, that long term low dose was not effective for me, so I used a high short pulse for a relapse; with no taper.gwa wrote:One thing to remember about the steroids is that they can cause osteoporosis which is also no picnic.
I also noticed this effect, but now that i have not been using them much regularly, I notice they are again having some noticeable effects. NB: I am using short term pulse steroids.gwa wrote:They also lose effectiveness after so many doses. The last time I took steroids (over 20 years ago) they did nothing for me, unlike when I first took them.
ok i'm ready for more..
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