I know I'm a B lister and all but dang!!!!
Anyway, I did Rituxan and am doing great. The only side effects I had were during the administration of the drug. Scratchy throat and itching scalp. When this happened they simply stopped treatment and gave me a shot of benedryl, waited a few minutes for the reaction to subside and then began the treatment again at a slower rate. After that they gave me a shot before every treatment prior to the start. I have really been doing great !!
Artifishual wrote:I hope you get it Lew, this might be what you need!! It has for sure made a difference in my life. I sometimes shiver at the thought of what would be had I not taken it. My MS had started really fucking me up, sorry for the language, before I had Rituxan.
I'd estimate that in my current rate of progression, I'll be bedridden within 12 months. Given that Rituxan failed its trials for PPMS, this is a last-ditch Hail Mary, brought about by my insurance company finally approving the treatment after four previous denials. This approval came as a surprise to both me and my Dr., who says he seen about 30% of his PPMS patients respond to Rituxan. Sure hope I fall into that demographic...
On other boards, I have come across PPMSers who have done well on Rituxan, and have seen their progression come to a halt. This gives me hope, and hope is a very good thing...
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