MS hugs - a rare symptom

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

MS hugs - a rare symptom

Postby MrsGeorge » Mon Nov 10, 2008 7:59 am

I just had an MS hug appear - well it's identical to others I have had and so I called my docs for something to help (they prescribe anti-inflammatorys to help with the muscle spasms). The dr that called me back had never heard of MS hugs and had to go away and check b4 he could decide what to give me. When he called back he commented that according to teh specialists it is a very rare symptom and am I sure?

Is it rare cos based on what I have heard it seems not that rare to me?
User avatar
MrsGeorge
Family Elder
 
Posts: 334
Joined: Mon Dec 10, 2007 4:00 pm

Advertisement

Postby TwistedHelix » Mon Nov 10, 2008 8:32 am

Unfortunately, doctors who don't know much about MS are not rare at all.

I've heard lots of people talk about MS hugs, but I'm not sure I've ever experienced one myself. I do sometimes feel a bit short of breath and unable to reach the " peak" of a really deep breath, is that the same thing?
Dom
User avatar
TwistedHelix
Family Elder
 
Posts: 599
Joined: Fri Mar 25, 2005 4:00 pm
Location: Northamptonshire, England.

Postby MrsGeorge » Mon Nov 10, 2008 9:13 am

best i can describe is bit like a painful vice squeezing me round my abdomen. makes breathing tricksy and i feel kind of sick (sometimes). It seems to fluctuate between very uncomfortable and downright painful.
User avatar
MrsGeorge
Family Elder
 
Posts: 334
Joined: Mon Dec 10, 2007 4:00 pm

Postby chrishasms » Mon Nov 10, 2008 10:34 am

The best way I can describe it, do 500 sit ups or go put on a girdle.

Go lie on your back and reach and stretch as far as you can. That will help stretch it out. Baclofen helped mine to but believe it or not you will get used to it.

My understanding is it is from a lesion midway down the spine. It sucks but it's survivable.
chrishasms
Family Elder
 
Posts: 1161
Joined: Thu Sep 14, 2006 3:00 pm

Postby MrsGeorge » Mon Nov 10, 2008 11:30 am

thanks chris, i'll try the stretching thing. It's not the first time - but it just seeemed wrong when the doc told me that it was rare!
User avatar
MrsGeorge
Family Elder
 
Posts: 334
Joined: Mon Dec 10, 2007 4:00 pm

Postby dignan » Mon Nov 10, 2008 1:27 pm

I had it for a couple of weeks when I experienced my first symptoms. Not painful, but a strange feeling.
User avatar
dignan
Family Elder
 
Posts: 1608
Joined: Wed Aug 11, 2004 3:00 pm

Postby Lyon » Mon Nov 10, 2008 3:40 pm

.
Last edited by Lyon on Sun Nov 27, 2011 12:07 pm, edited 1 time in total.
Lyon
Family Elder
 
Posts: 6063
Joined: Wed May 03, 2006 3:00 pm

Postby jimmylegs » Mon Nov 10, 2008 7:25 pm

the ms hug and 'can't get a deep breath' have been two diff things in my xp. the ms hug feels like physical bands constricting your rib cage. the can't get a proper deep breath was something that for me resolved with magnesium treatment.
User avatar
jimmylegs
Volunteer Moderator
 
Posts: 8944
Joined: Sat Mar 11, 2006 4:00 pm

Postby Lyon » Mon Nov 10, 2008 7:38 pm

.
Last edited by Lyon on Sun Nov 27, 2011 12:06 pm, edited 1 time in total.
Lyon
Family Elder
 
Posts: 6063
Joined: Wed May 03, 2006 3:00 pm

Postby Wonderfulworld » Tue Nov 11, 2008 2:53 am

I have had it too, very very uncomfortable and painful.
Neuros trot out the "rare" nonsense about lots of MS symptoms. I don't know what the underlying message is...is it that "it's most unlikely to be MS-related because I haven't heard of it"? It takes an educated neuro to understand rare does not equal unlikely.
Wonderfulworld
Family Elder
 
Posts: 773
Joined: Sun Aug 27, 2006 3:00 pm
Location: Ireland


Return to General Discussion

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users