This Is MS Multiple Sclerosis Community: Knowledge & Support

Anyone still following this thread?

My wife has been newly diagnosed with balo's and we would love to opportunity to connect with anyone else who is dealing with this disease.

Please check out the blog site I have put together for her:
http://ourlifeinjensbrain.wordpress.com

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If you want to get in contact with me, please email me at:
chrisbhansen at comcast dot net (replace the "at" with "@" and the "dot" with ".")

Thanks.

My mom was diagnosed with balos around the time this was posted.
I know this is a late response, but i hope you recieve it and we can talk further.
i've been taking care of my mom rather than being young, and i just want to give her hope, anyone avaliable?

Hey Morgan - I replied via your personal email. Hope we can talk.

My partner was diagnosed with Balos last month. Are any of those who posted in 2008/09 still checking in? Information is scarce and most is in medical terminology I don't understand. One comment I read in this forum is that, at the time, there were only 60 reported cases. I know it is rare, but that seems truly unbelievable, but would explain the lack of information.

If anyone still checks into this forum, please respond. I would love to "speak" with someone familiar with what we are going through.

Thanks so much.

MEJ:

My wife was diagnosed last year about this time. She is doing quite well, all things considered.

If you want to get in contact with me, please email me at:
chrisbhansen at comcast dot net (replace the "at" with "@" and the "dot" with ".")

I have been struggling with balos for almost 1 year now and it seems like things keep getting worse. I've been blessed with a headache that has been constant for 4 months, I'm extremely dizzy every day of my life, and now they think I may be having seizures. I was wondering if anyone out there has any advice because my drs (all 5 of them) keep giving me the same "I don't know" answer. I realize its rare but somebody must know something.