Pookie wrote:Thanks, Harry!
It's my fiance who has the MS and Trigeminal Neuralgia. His neuro put him on Gabapentin but after taking it 2 days, he got rubber legs and fell. Was not good! The neuralgia did stop for awhile - but it's back with a vengeance!
I found this post a little late.
I hope it might help.
My wife was also diagnosed with this.
The walk in doctor first said that it was an ear infection.
We then went to our own GP and he also thought it was an ear infection, he did say if it got any worse to go to the hospital.
I purchased the drops as directed and as soon as i administered the drops it set off the pain.
We finally had to go to the emergency at the hospital it got so bad, the doctor at the emergency shook his head when we told him of the first diagnosis.
She told me that it was the worst pain she had ever encountered, we have three children so she has understanding of pain.
She was put on Carbamazepine 200mg x 2 twice a day.Seems to be doing the trick with no adverse reactions.
Just a thought, i wonder if there is some link to the CCSVI seeing as this problem is in the veins.