i was just looking through some files and found these interesting pre-dx messages to my neuro. it's funny and sad. wish i could go back and talk to that girl, she's in full on terrified denial that this could be anything other than the usual b12 problem. she still hasn't realized that there is not going to be any flight to australia happening on feb 2. what a difference 3 years makes!
2006 01 27
hi there, ... thanks for answering my call today.
how did the bloodwork turn out? have you seen any results yet? do i have to go for a schilling test? i also searched on antibodies and parietal cells and now i wonder: you're thinking megaloblastic anemia? i forgot to tell you but my maternal grandmother was severely crippled all her life from rheumatoid arthritis so that's in the history too. anyway the numbness didn't climb any higher today. i went snowboarding after work (wearing a helmet!) i'm gonna go take some b12 now!
thanks for helping me out, have a nice weekend,
2006 01 28
hi, hope you're having a nice weekend. we had a beautiful sunny day at the hill, and it was really warm. okay, on to the update. i took b12 this morning, 1000mcg, and i had a terrible day so i just took 1000mcg more b12 (12 hours later). i noticed this morning when i went to put on one of my sweaters, that as i ducked my head while sitting i had a twang in my nerves around my lower back/pelvis. i had problems with that area of my back jolting me all day, even once or twice just standing still talking to people at the bottom of the hill. it feels like electrical current down to my toes, or like if you hit a spring coil with a hammer and it reverberates along, but i only feel it through the numbness. it doesn't hurt, it's just jolty. at one point in the day it felt like the back of my right thigh was wet or something, it felt so different from the usual numb.
on the way home in the car i found if i ducked my head i could make my lower back twang and it's still doing it. walking has been a lot harder today, and i have a dull ache in my lower back. i would say the ache is around the small of my back,to the right of my spine a bit.
my last day at the hill was supposed to be today but they asked me to help out just in case for tomorrow morning only. i said okay but light duty only. let me know if i need to come for any more tests at the hospital! ttyl!
2006 01 29
hi i came in for the morning at work and this is for sure the last shift.
since i got up this morning i have lost sensation in my chest and upper back, the backs of my arms, and my outer two fingers on each hand. i can feel sensation decreasing on the inner fingertips of each hand as i type, and my lower back is twitching again. i can still make it happen by bending my neck forward.
2006 01 29
> Hi - I/m just reading email now. I think you should come in to MAC and
> be admitted for a better W/U. I can see you on monday. If you do come
> in you will be admitted under internal medicine.
2006 01 29
Hi, glad to hear from you. I will take care of my business first
thing in the morning and then pack for the hospital. I tried to get the blood work results today, no joy there. Have you seen a copy yet? Do I have parietal cell abs? I'll call you when I get to Mac tomorrow.