This Is MS Multiple Sclerosis Community: Knowledge & Support

[lionheart]

Perhaps this topic is for Diet not here, but the moderators will move it if they decide.

Have you heard of Protectus 120, a pill which delivers glutathione to the body and is unique of its kind by allowing glutathione go straight in the blood while other pills dissolve it in the stomach and are ineffective.

As glutathione is very important for us, I'm really interested to learn about this pill, please share with me your experience.

[lionheart]

This drug should have been approved in the US last year Dec. Perhaps it will take some time until it reaches Europe, but I was hoping some of you could have some information.

[msmything]

Lionheart, Could you be kind enough to tell me what is beneficial about this drug, I've not heard much about it?
Thanks

[lionheart]

Check http://www.thisisms.com/ftopict-4088-.html for the effect on glutathion on human's body and esp. MSers'


Now this for Protectus 120:
http://www.maxlife.org/protectus.asp
http://www.mensantiagingproducts.com/be ... athion.php

Sounds good to have those pills, it would be way easier for those living in the states to get them than for us in Europe, but if someone overseas can check them out in the drug store or elsewhere and learn how many per day etc. details, it would be great to share.

[msmything]

Lionheart, thank you for the links.. I have a problem with anti-aging medication and claims.
If we were all subject to the trecherous diseases that a low level of this or that, there'd not be too many septuagenarians (and further) Every level of every thing lowers as we age.
It would also follow that cases of MS would be seen in an almost exclusively older population.
Here's the good news with aging, as we age all functions slow. So a diagnosis of many types of ca for example find the ca to be slow growing enough for medical tx to work.
With regard to MS our immune system loses some of it's teeth and becomes less aggressive toward us. This is not to say that the damage is already done, and will become more evident as we age.

[lionheart]

Yes, msmything, you are right, of course. Nothing has been proven to affect the course of the desease and there are tons of various supplements 'useful' for us, virtually anything can do. And we submit ourselves to whatever we hear. The treacherous thing is that you never know when you're feeling better, whether it's the supplement, diet etc. that has worked or it's the desease, as it's a well-known fact no one can actually predict its course.
But somehow most of us feel relieved to do smth more for themselves than prescribed, and this makes us feel better. And feeling relaxed and calm does good to ms, that nobody can deny. As my neuro said: you can take whatever you like as long as it soothes your mind. And that's neuroprotection.

Neuroprotection BTW is for another whole topic, a lot of research has been done in this direction, antioxidants are believed to play the role of neuroprotective agents. And neuroprotection is what matters, because you can lose your mielyn, but if your axons aren't degenerated they can well transmit neuro impulses and you be fine.

[msmything]

Sounds like I would like your neuro..relaxed and calm is often my goal for the day....
I agree with you Lionheart with regrd to the 'placebo effect'. I am a classic example. tell me something works, if I trust your judgement I'll find it does indeed work..Much like the power of prayer I believe
Yes, the topic of neuroprotection would burn up lots of pages. I like to p[ut the resources my own body has to use as often as possible, of course it easier said than done.
We all know that exercise has a well documented anti inflammatory effect, therefore is neuroprotective, however getting off the couch except to go to work is something I rarely do anymore...
I'm sorry if my original post may have sounded harsh..it was not my intent..
What time is it in Bulgaria Lionheart??

[lionheart]

Yes, placebo...! I am very choosy when it comes to follow unproven-scientifically-to-be-ms-helpful things. I mean, I can quite easily take supplements and other drugs and state they work and are useful, at the same time when it comes to diet....I want a scientific prove, sorry, before I submit my psychic and body to hunger. As for exercise, they have undeniable effect on anyone and I do in general, but smtimes get lazy and skip weeks.
For glutathione I read so many wonderful things, that if this Protectus 120 is available I would take it. I am visiting the states in the summer and will most probably try to find it. I am thinking also to check with Dr Sadiq in MsResearch centre in NY. have you heard of this institute and this doctor? I shall probably post another topic.

And what is your current treatment, msmything?

When in the US you're having breakfast, in Bg we are having dinner.

[msmything]

Then Good Morning Lionheart, I think it's almost time for your breakfast.

I looked up info on saud sadiq, he has a very impressive resume. It seems his center is right in mid-town manhattan. There is a tremendous amount of brain power doing research in the city, with Columbia, NYU, Rockefeller..all well funded. It would be fascinating to be there.
It seems that Dr. Sadiq and his center does alot of research on stem cell therapy.
The neurologic community seems to be split on the topic. I have not read enough studies. As it happens, I just picked up Time Magazine, the cover topic is Stem cells.
I started a couple of years ago on Avonex, the switched to Betaseron, The both did not agree with my biology. I have been on copaxone for about a year now, no side effects like the interferons.
The lesson I learned there is that each Neuro has their 'thing', a drug, treatment protocol that they believe is the best. And sometimes they become blinded to other options.
I relapsed severly on avonex, that neuro prescribed valium for it. I was sick and in unbearable pain on betaseron, that doc had helped develop the drug. He told me that that was asgood as I was ever going to feel again. My 3rd and current guy said 'clearly interferon is not good for you'
That's my long way of saying that we make the best caretakers of our own health. If a Dr.s research looks promising, find out who doesn't agree and why....
Hey Lionheart, where's ya get that name??

[lionheart]

) The name...I am very hard at thinking names usually, but as my sign is Leo, lionheart seemed what best reflected my attitude and nature.
But talking about names - msmything! - even better.

I posted a separate topic for Dr. Sadiq, it will be great if you could share your opinion there.

I've been on Betaseron since dx, and am feeling quite well actually. Visiting another doctor without having serious problems seems a little risky...although I am tempted a lot! Risky by having perhaps to change the therapy, as you said each doctor has his own way and 'drug' (only THE DRUG is still missing) and then what, I come back to Bg and who will follow me...