This Is MS Multiple Sclerosis Community: Knowledge & Support

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Just an FYI. My friend works at Northwestern and knows Dr. Burt and says he's a great guy. I actually missed the story but everyone I know who knows that I have MS has told me about it.

Take it from me folks. High Dose Chemo is easy. The next time you have a flu that causes you to throw up...hey- you've just had chemo! That's all there is too it! Don't be scared! No reason, MS already made you much sicker!

The biggest difference is when you wake up on the 5th or 6th day and your bladder works again, or you can stand up with your eyes closed and not fall over, or stand in a non HC shower, or your eyes don't seem dim anymore, or...you get the drift! 3-6 months later is even better!

I may be the wrong person for a non biased opinion but I personally find it offensive Neuro's are not jumping on board all over the country but alas I fear the Hippocratic oath is for preventing malpractice suits and not helping people. There is no reason I and countless others have stopped progressing, has lesions healing, and EDSS scores going down, and the rest of the world with MS isn't.

But then again with people like a few in this forum running MS organizations for helping people with MS, its no surprise. If MS was gone some people would have no job so why would they help to promote a procedure that ends the disease progression?

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I do plan to watch the videos but I can't from home because I have slower than molasses dial-up. I'll watch them at work. Not like I'll have more important things to do, right. The research is definitely exciting but I have to admit that I am one of those people who freaks a little when they hear chemo. I'm sure I would feel differently if I wasn't currently doing well. It's also true that most of the current and pipeline MS drugs are kind of scary too, so it's not such a big leap if you look at it logically. I guess I'm just waiting and hoping for them to say that they found the cure for MS and it's CHOCOLATE!!

Judie

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Hi Petakitty,
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Thanks, NHE

Well as they are learning about HiCy, there isn't a long term effect because it's not in your system long enough.

As far as the other chemo's offered, I really have no idea.

how long has it been for u chris?

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Had ms for over 19 years now.

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I will be 1 year out March 13th.

As far as I am concerned it is a travesty what I did is not the standard for MS treatment, especially when there are 50 of us...well more if you include all the other Autoimmune diseases...who can't imagine life without it.

The issue is with HiCy the chemo is out of your system within 48 hours of the last dose where other chemo's stay in the body for months if not years.