I truly have had a wonderful experience sleeping inclined since February 1998 when I was diagnosed with Multiple Sclerosis. At that time I was looking for information and ran into someone with similar experiences to mine - I found someone who had some pain and other symptoms. She was recommending sleeping inclined and put me in touch with Andrew.
What he offered involved no pain or money (my kind of therapy!!) I used a couple of large books to prop on the frame of my bed (how easy!!) The very first night, the symptoms subsided. That was amazing - but my husband complained about sliding down. I thought - no problem, it worked. I removed the books and slept flat again. The pain came right back! I suggested my husband could sleep on the couch or get over it.
We have both been sleeping inclined ever since. My neurologist asks me during my annual visit how I'm doing. I've had subsequent MRI's and there is no sign that I'm progressing negatively. The doctor reminds me that MS isn't supposed to get better (but I appear to be!)
Beginning in a few days I'm going to start toward a degree in nursing. My doctor is encouraging my studies - he doesn't foresee any problems with this rather serious endeavor. The MS is not a problem for me. I try to stay in touch with my body and take it seriously if it tells me I'm tired or too hot or cold. The best thing for these "problems" is to go to bed and get some rest. It has never failed to restore me to where I was before I was ever diagnosed with this "debilitating" disease!
Feel free to contact me at tharri8896AT
bex.net if you have other questions! Replace the AT for @ to talk to Terri
Curious minds would like to know . . . What has it been like to spend 11 years with MS on a tilted bed? Smile
How old were you when you started? How has it helped you? Has your MS progressed at all since you began this therapy?
I am looking forward to hearing from you, and I am sure that others will find your experience interesting and encouraging, too.
28 May at 03:35
I was 34 when I was diagnosed with MS. I was lucky enough to find about about the tilted bed right away. My husband complained about falling off the end, but I found an old headboard and we used it as a footboard and that stopped the problem.
I have experienced some occasional flare-ups, but nothing that hasn't passed completely. I occasionally "play" with the height at the head, but if something flares up, I go for a higher setting for a few months (or more) and it ALWAYS works!
"Marrital" relations are a big more challenging on an incline, but who says we can't use a different bed (the guest bed?) for that? It's not like I intend to SLEEP. Sleep is serious business to only be carried out on the inclined bed for my nightly MS therapy.
Even on vacation, I take my PVC pipe pieces to prop up the head. I have wondered what the airline screeners thought about the pipes in my suitcases!
Feel free to contact me with other questions - tharri8896ATbex.net
Letter to the Editor of Pathways from the Multiple Sclerosis Resource Centre. (MSRC) The charity that conducted the Independent Raised Bed Survey Report and the Charity that has failed to keep their word and help to conduct a study.
Dear Ms. Graham,
I have been asked to write to you to describe how I have been
successfully dealing with my Multiple Sclerosis symptoms. I communicate
regularly with those who are certain that the ABC drugs are the only way to
assure no further progression, yet I feel that they are overlooking something
completely safe and effective which has helped me greatly!
I was diagnosed over three years ago with relapse/remitting MS. This was
after some ten years of strange symptoms that went undiagnosed. My symptoms
began with numbness/tingling (pins and needles sensation) from my shoulders
down. That lasted several months. I went to a massage therapist that said
my muscles were tight and had my lie on small rubber balls along my spine to
help stretch those muscles. Whether that or simple a remission helped, I'm
The tingling was accompanied with a strange sensation when I tilted my
chin down to my chest. I found out after the MS diagnosis that this is
L'Hermitte's sign and was nearly an assurance of MS. I wish someone had told
me that then! My family doctor has little experience with MS and didn't
refer me to the proper specialist with such strange erratic symptoms.
About five years ago I had a problem which came on suddenly as I was
driving. I experienced double vision. I immediately went to an optician to
get a pair of glasses. Yet I complained that they didn't help much when she
prescribed bi-focals at age 33! After a few weeks a changed to a pair of
single vision lenses that I wore for some time.
Other strange feelings from the on-set was a feeling that my skin was
burned. It was super-sensitive to the lightest touch. My doctor diagnosed a
muscular problem and gave my muscle relaxers. They only made me sleepy and
the problem would come and go erratically. I noticed that a chill would
bring this feeling on and taking a warm shower with gentle massage could get
it to pass more quickly. Sometimes the feeling would take weeks to pass and
I could get it down to days or hours with the warm massage.
The queerest thing that happened to hasten the MS diagnosis was when I
woke up one morning totally without central vision in my left eye. I went to
the hospital and they did a CT scan and other tests with no diagnosis. A few
weeks later I got an appointment with an ophthalmologist. After observing that
I had no pupil reaction to light with no other problems, she asked if I had
ever been diagnosed with MS. I told her I has no diagnosis and she suggested
that a neurologist would most likely agree with her that that was the correct
diagnosis. She told me I was experiencing Optic Neuritis and that it would
like pass in another three weeks. She was precisely right!
After a second episode of Optic Neuritis with the same eye and not quite
such a drastic loss of sight, I had an MRI of my brain. The radiologist who
read the results gave a certain diagnosis of MS. I followed up with a visit
to a neurologist.
I was terribly facinated with the MS diagnosis. I knew very little
about this disease and read everything I could. While I was looking for
information on the internet, I was looking for specific suggestions about
relief from a hot, burning sensation, different from anything I'd felt
One link took me to a page when Betty Iams was suggesting a possible hint
for MS sufferers. She suggested that she had this burning feeling and she
had a great deal of trouble walking. I had been noting a little trouble with
walking, but a great deal of this burning. She also indicated that the need
to get up to urinate during the night interrupted her sleep. I had a little
trouble with this too. She suggested a study that she was involved in for
people with MS who were not on any other medications. She had tremendous
results and it seemed silly not to give it a try.
Betty's suggestion was from Andrew Fletcher. Andrew has done extensive
research, which originally began when he discovered how trees raise water.
Andrew found a way to use gravity to lift water higher than was originally
thought to be possible using current physics theory!
Through extensive research, Andrew took his theory further by relating the new
laws of physics to how our human bodies function. His theory is that all of our
bodies contain mineral salts and sugars and that when we lie flat thay accumulate,
without being circulated or removed by the bladder.
These minerals may be what is "eating away" at the myelin causing
the MS symptoms. Andrew's thoughts suggest that sleeping with our body
inclined slightly, we increase the body's own circulatory system washing away
the minerals that are at fault.
My first thought was one of confusion over the scientific principals, but
that the notion of simply raising the bed seemed so simple that I had to TRY
it. I placed two plastic crates under the frame of the bed. I measured and
that was only 5 inches higher at the head than the foot, but was the best I
could do easily. The first night I tried this, I noted that the burning in
my leg was gone and I didn't get up during the night. My husband hated it
since we slid down to the foot and wasn't going to do it again. I put us
back flat and went back to the burning feeling right away. The next night I
was ready to send him to the couch! I was going back to inclined. I did add
a footboard to ease the sliding down problem.
For three years I have been sleeping in this position. I have had no
further major symptoms with MS. I do have an occasional problem usually
aggravated by stress or lack of enough sleep time. I had an occasion to
sleep flat in a hotel for one night and I had an episode of Optic Neuritis
that passed the very next night I was back to my own bed! The bed has helped
my husband with his gastric reflux and we both snore much less! Neither of
us would go back to sleeping flat. I have modified the plastic crate method
of raising the bed. We now are using plastic PVC pipe that the legs of the
bed simple fit into and the frame rests on top as if we'd simply extended the
legs. The head of the bed is 6 inches (15 cm) higher than the foot of the
The only medication that I take is .5 mg of Xanax to assure a solid
night's sleep and cholesterol medication, 20 mg of Zocor. Sleeping inclined
was certainly helpful for me. I recently had another MRI. "There are no
enhancing lesions to suggest acutely active plaques and no other
contrast-enhancing lesions are depicted on the MRI". This is in stark
contrast to the MRI three years ago! My only lingering symptom is some loss
of feeling in my left hand. Increased use and exercise seems to improve its
I just received the most incredible e-mail from a lady about her raised-bed experience. Enjoy.
I was diagnosed with our favorite little disease (MS) about 3 years ago. At
the time I began to read everything I could about it. I happened to find
your posting to (something?) about sleeping inclined with info about
e-mailing Andrew Fletcher. I did that immediately. I had immediate success
with the bed and had set-backs when I did have to sleep flat. I've been
inclined ever since (never to go back to flat) .
I just wanted you to know that your testimony about how something so simple
could be SO useful was a God-send for me! After 3 years I just had another
MRI and there were no "white" lessions to be seen! Andrew DID say that this
may be an eventual cure for MS. I didn't have MS too severely when I got the
diagnosis and my doctor is mystified how/why I'm better? People with MS
don't get better! (yes, I'm afraid I may have)
Anyway, thank you for making your story available to people over the
internet! Without your posting, I still would be struggling along and
probably on an ABC drug of some kind (which I'm not and never was). THANK