This Is MS Multiple Sclerosis Community: Knowledge & Support

Has anyone ever heard of glycothymoline? I have a friend who is reading about Edgar Casey and it stated that Glycothymoline is supposed to relieve MS symptoms. I have found it online as a mouthwash for about ten dollars. Is it worth trying?

Don't see how it would help MS. You never want to swallow pine oil, it's poison! Pine bark extract is a good supplement for MS....
Save your $,
AC

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

I've had ms for 18 years I've been through the gamut from Swank is brillant to BBD to everything else you can think of natural including long years of no gluten and no red meat. My MS was slow moving and I thought myself doing great for years; would have waxed poetic about the wonders of these approaches. Eventually I added copxaone when it came out. I was set; benign course, all the great naturals, copaxone. But I progressed anyway. Speaking with others at the support group, it appears everyone esp early in the disease thought they'd be able to control it with some "secret they won't tell you about" I know of very VERy few people who stay with those things beyond the 10 year mark because they really don' t work.

At one point in time there was big drama about the calcium EAP that "a german doctor cures his patients with" I knew someone who went to Germany to get it. He did pretty well for several years then went downhill rapidly. The marketing of these kinds of approaches seems to be better than their product. BTW, in Germany they sell lots of Tysabri, copaxone etc., just to give you an idea of how well EAP works there.............

I've never used Cayce's plan and do not know anything about it, but please be careful. It has been some time since Cayce did his "readings for MS" so I would imagine that if it was helpful we'd have heard of it by now. It'd be pretty hard to keep cured people quiet.

Thanks for the responses! I see you mentioned "red meat"... Now let me ask you this if I may, my diet alot of times consist primarily of meat as well as a good amount of beer on my weekends..... In your opinion, is this diet not a good idea, or should I keep on enjoying my lifestyle?

hi bubba, i think diets that focus too much on one idea are trouble.
i would suspect that a diet consisting primarily of meat would be just as unhealthy as my pre-dx diet, which included pretty much vegetables and some grains/bread.

when i got sick and started reading in real detail, i was still trying to figure out how to be a healthier vegan, but in the end i went back to omnivore.
i still eat all kinds of veggies, plenty of salad, dried cranberries and raisins, nuts, different kinds of soups and chili and stew, LOTS of dark leafy greens like kale, spinach, and chard as side dishes with dinner, broccoli and cauliflower, sweet potato, rice, barley, quinoa, AS WELL as all the non-vegan things like milk in my tea, cream in my coffee, a moderate amount of cheese, yogurt, eggs for breakfast a few times a week, hot cereal on the others, and when i have to go out super early i am guilty of the drive-thru breakfast sandwich - that's about 2 weeks out of the year. i am trying to get a healthy/sustainable fish choice in me 3x per week for dinner, and in between that a mix of beef, pork, chicken, and vegetarian dinners. i'm still not a huge fruit fan overall, but i like fruit smoothie and buy a litre a week. overall this was a huge change!

on the other hand a diet of meat and beer is more likely to land you in the gout camp than the ms camp so that's one thing i suppose! but, although ms patients are grouped around an average uric acid level of 194, and gout patients are usually up more like 360+, it's not unheard of for there to be some overlap.

if you drink alcohol, it's considered lowest risk of disease to spread out your weekly consumption to 0-1 servings per day, and if you do bunch up on a single day, never to have more than 2-3 servings at one sitting.


HTH,
JL

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my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

Hi Bubba
jL saidI agree! I have eventually come to that conclusion too. That having been said though, if your diet is not what would be considered healthy by people who know those things, then you will do a lot better and your progression will be slower if you make a committment to change to something genuinely healthy and stick to that. Exercise also.

And I also do a lot better on an individual day if I have a lot of water, anybody else that way too???.

Even a little dehydration is bad for my function and I walk better and everything with water.

JL, what a mind bender it must have been to discover that your vegan eating habits allowed MS through! I had been eating eat meat so I had to go through the whole meat is bad thing. I suppose the BBD would have fingered all the beans and grains as the culpit for you, as well as low b12 and d?

just enjoy Bubba

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Had ms for over 19 years now.

Hey Bubba...
All things in moderation. That goes for drinking alcohol, eating saturated fats, rodeo riding and skydiving
Make sure to get fruits and veggies and lots of fresh air, sunshine and exercise. Just like your momma told you-
Did you hear anything yet about your test results?
AC

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

hi marie, yes the b12 was definitely a culprit i was aware of, among the various other things i learned about later...

i'm not exactly on board with the bbd foodwise... i feel it's a kind of reactive 'avoid this food because your immune system is crap' rather than a proactive 'fix your immune system so it can handle these foods the way it should' strategy.

such as the avoid sugar thing and leaky gut/immune problems. sugar drives your zinc level down. ms-ers are low in zinc. so are vegans. i wouldn't want to just cut out sugar without addressing the real problem which i believe is in part associated with suboptimal zinc. my zinc level was way lower than the lowest ms patient in that study i posted before.

as far as 'proteins with the potential to cause autoimmune reactions', i decided it would be better to figure out why the immune system overreacts and deal with that, rather than just avoid the problem. for me that's where the d3 came in. i live in the temperate zone and my d3 level was well under the sweet spot for bone health, let alone immune system health. for years, as a vegan i didn't eat any of the foods that contain natural vitamin d3, or that are fortified with it (or d2).

_________________
my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

and YES hydrated is better. water is pretty key

Yes I do see. I was a bbd'er for a long time but eventually I just realized it was not working. It is much more pleasant to eat regular food. It is in fact one of the few things I can still do in a normal way, why turn myself into a food phobe and stop yet another angle of life voluntarily?

I see the d angle as critical as well........
thanks JL
marie

no worries m

_________________
my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

And I will... Thank You everyone for the responses. I didnt mean for my question to be an ignorrant "obvious" question but a serious one. Thanks for taking it that way. Obviously, any health professional is going to say "NO..... What are you thinking?" But that is my life and I hate to change. I grill or smoke out meat on the barbie several times a week. I love to partake of my beer while I conduct such activity! My blood tests are always great with cholesterol readings below 200 and LDL below 100. So my diet works for everything else. I was just wondering what you guys (and gals) thought of it. Thanks!!!!

Bubba, I can only second what you've written! My thoughts exactly! My way of viewing all this diet stuff!

Marie, What do you mean by 'slowly progressing'? Over how many years and what deteriorations you observe? What of the things you've been doing do you belive has slowed down the progress?