LR1234 wrote:I may be a rare case
I'm not so sure you are such a rare case. A doctor once told me that since the introduction of MRIs there has been a growing group of people with classic MS symptoms who suffer tremendously for years with fatigue, partial disability, numbness, optical problems etc. yet receive no diagnosis. As a result they get no understanding, sympathy or support from friends, work and family (who may even disbelieve they are genuinely ill). They are refused an MS diagnosis, due to the fact that no visible lesions are seen on MRI.
Before the 1980's (and the widespread advent of disability allowances) diagnosis was usually made from taking into account the symptoms being experienced. This seems to make sense, especially since the recent discoveries that focal lesions are merely one
aspect of the nerve degeneration and dysfunction in a disease that should no longer be called "multiple sclerosis".
Sadly for this unfortunate 'undiagnosed group' their disabilities and hardship are sometimes worse than many of those who officially have MS (many of whom can still jog, drive and live normal lives).
Also, a surprising number of healthy people develop small lesions in the white matter anyway (especially after the age of 50!)
So Wendy, maybe you will have to wait till then.