Robbie you are EXACTLY where I am.
I am all for Jesus Christ because he is the only Savior who forgives and performed Miracles showing himself as God's Son. I used the analogy of Christ because I am Christian and it's easiest for me to use. If you must to be able to understand, change it to "A Higher Power" if it makes it easier to handle.
Revimmune (Accentia)I know, is waiting patiently for some big big money from a major player in the pharma world. The big players too are just waiting for the stock market to start going up. The reason being is I guess the FDA is fairly OK with Revimmune and has been granted a verbal fast track status as soon as the money is there. As soon as well, I can't say the name of who it is, comes on board, there is going to be a large press release with findings from all the folk JH has done - Not just the original 29.
Again this may be a sledge hammer approach to MS, but, if you do it once, never accrue any disability, or recover from the little you may have attained from the exasperation to make you realize you have MS, who cares if it's chemo? Do you think anyone will care if the doctor says I'm going to give you the flue for a week but then the MS will be gone? (Some people may need 2 doses to get rid of all the auto immunity)
Again, I reiterate, if someone else had a treatment that worked this well I would drop HiCy in a minute...they just haven't. Yet I hear people all the time who are perfectly viable candidates to end this monster but they would rather bitch about it.
Personally when the fatigue left me and I knew I was getting better I knew I had found the Holy Grail of Auto Immune Diseases. Unfortunately I got yelled at by people who are total candidates to be done with disease so I stopped. I am a firm believer half of those people are the same people who will be pissed at me when there docs suggest them to do it in 2 years. Sorry if you don't get it all back. I waited because HiCy wasn't an option. I was number 3 when it became one. No offense folks, I don't care what you guys do. I am hear to provide an honest answer.
So I know for a fact the NMSS has been approached for money and said no. I also know they are not funding a few potential NEW real treatments in loo of playing with trials with existing drugs so they can see if there is a 5% improvement in a endpoint!?! Huh??!! Excuse me if I roll my eyes.
So again I ask, who is the NMSS side on?
Last edited by chrishasms
on Thu Mar 12, 2009 8:01 am, edited 1 time in total.