Just curious...

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

Postby robbie » Thu Mar 12, 2009 10:47 am

Just talking about the crabs for a second, 3 people out of 10 may or may not benefit from them. When you are first diagnosed the doctor wants you on one of them, 3 people in Canada are newly diagnosed with ms per day. To me that is a joke but it’s all we got so lets keep milking them till the money river runs dry and then move on to the next cash cow of hope. No money in a cure.
Had ms for over 19 years now.
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Postby Lyon » Thu Mar 12, 2009 12:53 pm

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Last edited by Lyon on Wed Jun 22, 2011 2:57 pm, edited 1 time in total.
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Postby notasperfectasyou » Thu Mar 12, 2009 1:25 pm

Bob,
I just want to thank you for your level-headedness about these things. Here's how I see it. You, Chris and I have all had the experience of feeling like we had/have the path to the cure. I know what it's like and we have swapped our thoughts here about it. I appreciate your candor in helping me pull back to reality when I needed a little body check into the boards. I can say that I understand that early results, midterm result can be very exciting and get the blood pumping, however in the end it's going to be all the obstacles, not just some of them that must be crossed. I thank you for helping me see that Kim and I have a ways to go before we can truly sing our song with the backing of time to support us.
Ken
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Postby Lyon » Thu Mar 12, 2009 3:27 pm

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Postby jimmylegs » Mon Mar 16, 2009 5:41 pm

aw shucks you guys, i missed the kudos earlier, but THANKS!!!!!
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Postby chrishasms » Tue Mar 17, 2009 7:31 am

Well I'm done with this thread but all I got to say is simply wait and we will see.

I do know that immune ablation has been proven safe since the 1970's on diseases worse than MS over 500 times.

Like I said, I guess we will just need to wait until later this year to see it come out as a treatment to be taken seriously.
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Postby chrishasms » Tue Mar 17, 2009 8:28 am

Just as a side note, why am I the only one who had this done who ever posts on here? Keri is but she is reactivating and has something to report. Otherwise, no one has anything to say because nothing is happening.

The reason is as people get better and are able to do more they are spending less time in forums and more time doing stuff. Chris AKA PVNS told me the other day he's just rehabbing and getting better all the time. He said he hates coming here because he says people here don't want good news.

So what are the chances these other folks who did HiCy and used to post regularly who do not feel the same as him?
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Postby robbie » Tue Mar 17, 2009 8:52 am

Chris if you’re better than I would get away from the computer and enjoy your life and be thankful that you found the magic drug. I’m sure if it turns out to be what you think it is than the whole world will here about it soon enough. Have a good life man; to have gone through what you have and leave ms behind you must be overwhelming. Take your 2 oz and enjoy the second chance.
Had ms for over 19 years now.
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Postby chrishasms » Tue Mar 17, 2009 9:29 am

I know but my Pastor called me a unconscious helper. In other words I just don't stop. I had to do the same thing with a few businesses I know to get them to give to a couple of charities too lol.

I guess I will become like the others, an observer, who grinds his teeth at what he reads lol.
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Postby Lyon » Tue Mar 17, 2009 10:39 am

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Postby robbie » Tue Mar 17, 2009 10:49 am

I guess I will become like the others, an observer, who grinds his teeth at what he reads lol.

why would you even do that? you don't have ms anymore
Had ms for over 19 years now.
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Postby gibbledygook » Tue Mar 17, 2009 10:56 am

I always thought "lol" meant "lots of love". This can't be right. Could somebody clarify what this acronym means?
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,
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Postby patientx » Tue Mar 17, 2009 11:01 am

lol = lots of laughs

It's about the only web acronym I know.
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Postby sou » Tue Mar 17, 2009 11:04 am

"laughs out loudly"

lol

You could download the "wtf" unix command line tool which explains all abbreviations used in forums.

sou
Shortest joke: "We may not be able to cure MS but we can manage its symptoms."
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