This Is MS Multiple Sclerosis Community: Knowledge & Support

Just curious if anybody has done this. And what the process is like and if has helped anybody. I havent responded well to solumedrol and im thinking of suggesting this to my nuero. I appreciate any input and opinions. thanks

Andre-
You're right-IVIG can be good for folks who haven't responded to steroids. Here's a link to the thread where I mention the studies that looked into this:
http://www.thisisms.com/ftopict-6851.html
My husband did really well on steroids, so it hasn't been an issue for him personally. But I know you're not alone.
Good luck and talk to your neuro-
AC

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

I did five rounds of plasmapheresis in a two-week period in 2007. I have PPMS, and the plasmapheresis did not help one bit. There is evidence, though, that it does help a subset of patients with relapsing remitting disease.

I found the procedure extremely unpleasant, and very grueling. It's quite bizarre to sit there watching blood flowing out of one arm, into a machine that looks like it stepped out of the 1950s, and then back into the other arm, for two or three hours. After each procedure, I was hit with a tidal. wave of exhaustion, the likes of which I'd never before experienced.

Given that the treatment did nothing for me, the experience certainly wasn't worth it. Of course, the story would be different if the results had been better...

just wanted to note that IVIG and plasmapheresis are not the same thing. IVIG is infusion given to patients intravenously in an attempt to modulate the immune system. Plasmapheresis is a process in which a patient's blood is filtered to remove their plasma, which is then replaced with a sterilized blood bank product and returned to the patient's body.

Thanks for correcting me, Marc. Didn't realize the distinction.
AC

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS