No as the other will tell you.
I do feel sorry for the progressive type to because this may end the process but no improvement, but they always test it on RRMS first it seems. Sandy is SPMS I believe.
Believe it or not, there are not that many people with MS who have a computer. Least of all with this trial.
All of us who have had this will tell you, minus Keri, it has stopped our progression. With this some get a bit worse afterwards, but it seems to level off and hold. Much can be improved through PT.
Let me start at the beginning:
I was in a wheelchair, unable to pee, unable to type, 4 hour nap per day fatigue, balance, cognitive issues, MS. I was getting worse everyday. I had numerous lesions in my brain and spinal cord.
I researched the hell out of this first. All I could find was positives for all auto immunes they had tried it with least of all MS. The MS results were spectacular. All I wanted was to stop the progression and to maybe pee again.
Since this treatment 1 year ago today I might add, my life is dramatically better. I can pee, walk, no longer nap, have 0 cognitive issues ( don't tell me wife), and maintain physical therapy.
I met a man named Steve Fossett ( I hope it right) from VA doing the same thing I was doing and he was 2 weeks farther along than me and he was walking for the first time in 2 years.
After the treatment they put me on Copaxone because they believed it would retrain my immune system to not reactivate and if it did, it would heal the issue. I had a new lesion appear in Nov and as of February it had healed and old damage was healing and going away. I have MRI photo's to show you the difference if you would like. I'll show anyone my MRI's to prove it.
This treatment will allow damage that is not to old to heal. There I said it.
The reason I say I was previed to info was the doctors asked me to come back to Johns Hopkins to speak about the treatment to a group of big wigs from Baxtor. I was going to be damned if my big mouth was going to spoil it. Now I was told by someone I can open up my mouth because I have no bearing on it. I figured the best thing I could do was give the information to those who would like to see it come to the forefront. There is a link so use it or not. It makes no difference to me.
Don't shoot the messenger.