This Is MS Multiple Sclerosis Community: Knowledge & Support

Hi all, you'r genius on this board

In 2006 i was in really bad shape (tingling/stroke like event(3 times)/burning/tremors/pins & needles ...)

They did an MRI (i end up to the ER ...) and this is the result.

Sorry it's a transduction, i did my best (it's in French ...).
Remember they where looking for possible STROKE only.
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Examination realized according to the standard protocol.

Presence of some abnormalities of signal in the white material peri-ventriculaire consisting in small zones of hyperintensity in FLAIR and T2 measuring each 3 mm or less in the left parietal region and less marked in left frontal. These discrete abnormalities of signal are not specific, not coming along with abnormality of distribution at present.
Examination without the other peculiarity. No sign of stroke. No sign of hemorrhagic expansion.

Conclusion:
Presence of some hyper dense abnormalities of signal in FLAIR in the left corona radiata especially in parietal, not specific without abnormality of associated distribution.
Examination in the limits of the normal.


OK ... i read that after 40 years old you can have those hyperdense things that could be "mini stroke" events (?) .. but

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Since now i'm back to the same events as in 2006 (burning/tingling/ ...).
Let say in 2006 i had A,B,C symptoms that reduced after month to A and B (to a lesser degree).

Now in 2009 i have
A,B,C, E,F that reduced to A,B and F to a lesser degree.

So it's adding up with each remitting coming from nowhere ...

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Sorry to be so long.
Take care[/i]

Bummer on the new symptoms. I'm sorry.

If it were me I'd want to be seen by a neurologist and see if a new MRI is in order. The hyperintense area you had before were not classic for MS or they'd have diagnosed you as these days clear MRI lesions are justification to put you on CRABs. But new symptoms and a pattern that starting to look relapsing is suspect.

I hope you get answers soon so you can decide what to do and get moving forward! Not knowing is its own kind of heck.

I saw a NEW neurologist. He ordered an EMG that i should have April 7.
Then i will see him on end of April for results.
I'm scanning old MRI and exam i had for him
Then i will prepare a chart (symptoms/time) to show the progression.
You know ... just talking is not enough. A chart is clear and precise (should be my engineering background? ).
I'll ask a new MRI.
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Sure it's not the USUAL pattern, but pattern is a TREND only. There should be some peoples out of this trend. That may explain why i don't have trouble walking, may be, and it's mainly paresthesia.
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By the way i had vertigo many time unexplained (once in the company, an other time walking on the road, ..) then back to normal.
I felt down twice in my bathroom suddenly then back to normal ...
And worst, this pain i had in 2004 all around my chest like i was "crushed" for hours (i took plenty of Tylenol ... nothing) look like this "MS hug". This thing is only seen with MS as i understand.
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Anyway, I'm not anxious at all, just "fed up" (sorry) of not been properly diagnosed and treated as "psy" what ever it is. I was to the point that i would prefer to die than to suffer all the way long like this. For me, not knowing, even if it is a dead sentence is worst than staying like this (you know, engineers like to understand ).
Every time i phone to my mother for example, what to say? don't know where I'm going? .. and me, can i go on holiday in France for example (the last relapsing was this summer when i was in France!)?

Thank you for your response.
Take care.
PS: I saw the paper with this venous problem .. so i started to take some aspirin (not a lot) ... will see.

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My story
http://www.thisisms.com/ftopict-6956.html

Hi Pinpricks,
Have a look at my posting just down from yours reading"I think i may have the dreaded MS".

For me as i stated in that post it started as if it was like a seizure and a stroke all in 1. The "MS Hug" is caused by leisions in the spine, so the MRI may not show them (yet). The story you are telling is very similar to what i have experienced (with perhaps a few little extras thrown in just for good measure).

Anyhow have a read of my post and do whatever research you can and if you still think it may be MS, book a full MRI especially if you think you have had "the hug". The thing is with MS is that no 2 patients are the same.
Cheers,
Scotty.

Thank you scotty.

I dig back in the past ... and found some more "strange" experiences.
- Back in 198? ... don't remember well ... i had lost my strength on left leg for 3 days (drop foot). I had to use both hands to lift my leg out of the car.

- Just find out that at some years after, the entire left hand became completely numb for one full day, but i was able to drive my car anyway ... when it came back, no tingling at all (if it is a pinched nerve, you have tingling).
- Found out 3 episode where i had "like" MS hug but down both legs, an incredible crunching pain.
One time i remember having rush to my bathroom, taken a hot bath lifting both legs very high ... i didn't know what was going on ...

- I had kind of vertigo experiences. They found nothing (may be nothing to do with MS)

Anyway, i'll got some older MRI showing nothing except the last one.
I am doing a resume of all that stuff and will show it to the neuro next time. Hope he will not say as previous time i was told ("it's in your head", "anxiety" even on holidays, "psychosomatic!!" ...)
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Anyway i started a "gluten free" diet (avoid wheat and so on, replace by millet for example)... will see if it help. It's not a problem for me since I'm never really hungry (some other stuff brain related ... IBS yaaa) ...
I already stop drinking coffee. Some paper state that coffee increase chance of inflammation, who knows ...

huuuu ... just a question ... is there any study done looking for a correlation between MS and IBS (Irritable Bowel Syndrome)? .. just to know. Like for MS more women than men ...


Take care.

_________________
My story
http://www.thisisms.com/ftopict-6956.html