Told my Mum - who is a fabulous caring person, but sees me as doing ok and not in real need of help - that I was exhausted this week and she said "yes, me and your brother are so tired too this week, I wonder is it something in the air".
I bet we've all heard some form of that one!
I have slowed on telling people about my MS. I've had it three years, and get the feeling folks don't "see" anything wrong and therefore don't want to "hear" anything about it anymore. I think people get MS-friend fatigue. I can't say I blame them, really.
So on the days I trip 10 times b/c my leg won't lift, I just try harder to lift it higher, concentrate as I walk, and go on.
Can't pee? Who wants to know that! Peed 6 times before finally falling asleep? TMI!
Maybe I underestimate others and am just tired of thinking and talking about this stuff myself! It seems so redundant to me, I can't imagine being someone else listening to it.
I do know that people don't understand. They don't understand that even when you look fine, and you have no big, obvious symptoms, the MS is with you constantly. How much do I spend during the day not feeling MS'y? Not much. Yet how do you explain it so that people get it? I don't think you can. Even that list you posted, Cheer, is awfully short. It encompasses SOME symptoms, but it does not BEGIN to describe the CONSTANT things that an MS'er feels. Heavy. Tired. Nauseas. Vibratory. Itchy. Vision issues. Clumsy. Can't think. Can't pee. Pee too much. Can't poop. Legs burn. Legs shake. Arm hurts. Throat lump. The list goes on and on. How many times a day these various things come and go? Many many many for me. Different things on different days, or weeks, or months, but ENDLESS! So so redundant.
It is no wonder that others don't want to hear it. I am sick of it myself.