This is related to the topic about people not getting it. W hat happens when you can't find the "health team" that the ms society likes to talk about? What do you do when they tell you they "can't understand you" on the phone and insist that you drive 400 miles to see them even though you just saw them the day before? What happens when 99 percent of your questions are answered with a bad attitude and a quick ...ask the ms society?
It does make you wonder. Where is all the money that is being raised? Research I suspect. What about patient care now?
Still on the road to finding an md that doesn't dismiss my symtoms. Gee I thought by the time you are 50 and get ms, you earn the right not to be treated like a neurotic.
Oh well, because it is making me feel better to assert my right to free speach under the 1st amendment to the us constitution
It is my opinion that the ms clinic at ohsu in portland run by an md named Bourdette who is apparantly one of the best (at what I'm not sure) in the country...is a dark whole of patient dissing assholes who are looking to get their names on some big research paper and see patients as an annoying necessity to reach their professional goals.Again it is just my opinion but to anyone in the northwest, stay away from these people...they don't like patients who ask questions, they don't want phone calls, they don't want e-mails, they act like they have never heard of anything your going through, they don't give out info on ms....yuch! when is obama going to save us from the money gubbing md's who if they had one fourth of what we deal with every day would be running to their mothers, tears falling down, butt wipe in hands begging for her comfort!?!
Ok thank you...I'm happy for what is left of the first amendment and so happy you are here to listen. If the ms society was all that was out there I'd be seriously annoyed.