when the mds and rns just don't like you

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when the mds and rns just don't like you

Postby reneelucia » Wed Apr 08, 2009 7:41 am

This is related to the topic about people not getting it. W hat happens when you can't find the "health team" that the ms society likes to talk about? What do you do when they tell you they "can't understand you" on the phone and insist that you drive 400 miles to see them even though you just saw them the day before? What happens when 99 percent of your questions are answered with a bad attitude and a quick ...ask the ms society?
It does make you wonder. Where is all the money that is being raised? Research I suspect. What about patient care now?
Still on the road to finding an md that doesn't dismiss my symtoms. Gee I thought by the time you are 50 and get ms, you earn the right not to be treated like a neurotic.
Oh well, because it is making me feel better to assert my right to free speach under the 1st amendment to the us constitution :roll: It is my opinion that the ms clinic at ohsu in portland run by an md named Bourdette who is apparantly one of the best (at what I'm not sure) in the country...is a dark whole of patient dissing assholes who are looking to get their names on some big research paper and see patients as an annoying necessity to reach their professional goals.Again it is just my opinion but to anyone in the northwest, stay away from these people...they don't like patients who ask questions, they don't want phone calls, they don't want e-mails, they act like they have never heard of anything your going through, they don't give out info on ms....yuch! when is obama going to save us from the money gubbing md's who if they had one fourth of what we deal with every day would be running to their mothers, tears falling down, butt wipe in hands begging for her comfort!?!
Ok thank you...I'm happy for what is left of the first amendment and so happy you are here to listen. If the ms society was all that was out there I'd be seriously annoyed.
Renee
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Postby cheerleader » Wed Apr 08, 2009 8:34 am

Renee,
Sorry the Portland clinic isn't working out for you. It seems like you live in an area without many options for neuros with MS experience? Is Portland the only game in town (or 400 miles from town)? Your docs should not dismiss the symptoms you are experiencing as a patient diagnosed with MS...unbelievably frustrating.

This site is a good place for asking questions when the docs don't have the time or knowledge...always feel free to fire away. Hope you can find some other options closer to home.
AC
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Lyon » Wed Apr 08, 2009 11:03 am

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Last edited by Lyon on Sat Nov 26, 2011 1:48 pm, edited 1 time in total.
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Postby peekaboo » Thu Apr 09, 2009 1:03 pm

renee -

Do you have a relationship with a GP? If you have a GP's ear, he/she could order all the MRI's you will need. Ususally the MRI tech or attending Physician will submitt a letter breifly stating what the mri shows. plaques on the brain neck or pine etc. that would be related to MS or maybe a diferent desease.? PS I am 50, menapausal and proud to be neurotic :wink:
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Postby reneelucia » Thu Apr 09, 2009 1:14 pm

You guys are so funny. Actually, I could get the gp to order the tests and go around the "specialists" I'm not even sure why we need to go to neurologists after we are diagnosed. There are like 5 ms meds out there and they just go down the list and treat symptoms. Its taken a few months to realize there is nothing they can really do. We are on our own to figure it out, aren't we???
Neurotic and Proud.....great bumper sticker material. Thanks
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