I wish there was, Rev. The problem is the word "clout". We're outnumbered and out-powered by the pharmas, politics, etc.
I do what I can through the labor movement (unions) in the U.S., but you can see just from this message board alone, how heaven forbid you should actually "question" too many things going on in the medical world (or any industry, for that matter), because you'll literally get beaten up for it!
I did see recently where some researchers are questioning how clinical trials are being run (and I think I saw where even the NMSS said something on their website about advocating clinical trial protocols to change.) Not to mention there is talk now about something called the MTI as being a better "marker" for measurement of MS progression and disability correlations than the MRI could ever think of being. So, maybe something new will come down the pike soon.
This may sound defeatist, but from what I can see, we'd just be a whisper in the wind right now.
EDIT: Yes, Rev....I was correct. Such as the NMSS is in some people's eyes, on this matter, they agree with us, Rev. See: http://www.nationalmssociety.org/Research-2004Dec9.asp
Let's wish them luck. Perhaps if we do support the NMSS, we might be able to support them with this aspect, at least. They "theoretically" have the most clout for MSers, I'd think.
SECOND EDIT: I, at the very least, liked the following statement in the NMSS's article:
...MRI protocols are nearly always incorporated into clinical trials of MS, but because there is only a limited correlation between imaged lesions and a person’s clinical picture, MRI has not yet been accepted by the FDA as a “surrogate” for a primary clinical measure of benefit.
Amen, again, Rev!
Although, I MIGHT question who at the FDA told the NMSS that they do not accept the MRI as the primary clinical measure of benefit. Since when? HAH!
Other than that, though, there is "indication" at least that the NMSS can see that "something" isn't quite measuring up with the way clinical trials are currently being run. That's better than nothing!