jules

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

jules

Postby scorpion » Wed May 27, 2009 9:43 am

I was just wondering how things were going!! Anyone hear from her??
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Postby catfreak » Wed May 27, 2009 3:17 pm

I got an email from her last week. She is waiting test results for blood work and several other things. I think she feels out of place here now that the Dr told her he does not think it's MS. I wish she would come back and post. I miss her.

That's what I know so far.

As she would say "Hugs"!

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Thanking you so much

Postby 71jules » Wed May 27, 2009 8:00 pm

:) Wow Scorpian and Catfreak, thanking you so much for your concern. I am so touched that I would still be thought of.

An update. I am going to the Dr tonight for blood work results after having 9 spontaneous bruises from a drug.
I have a new symptom being flashing light around the outside of my eyes and some stabbing pain. I am seeking an appointment with an optometrist and have also made a new appointment with a new NEURO for a second opinion. That appointment will be in August. I am not one bit happy or confident in the current one.

I have still been unwell with symptoms but having the summer gone from Australia and into winter my symptoms have died down somewhat.
I still have symptoms of speech difficulty, walking difficulty particularly on any kind of lean on the ground or unsteady ground such as rock. Tightening of the throat and general unsteady feeling and strange feeling in my head hard to explain. Weakness in hand and slight tremor.

A lot still but have noticed not as severe.

I am so touched honestly Scorpian and Catfreak and yes as I always say.

Hugs :wink:
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Postby Needled » Thu May 28, 2009 7:48 am

Hi Jules, Glad to hear from you. Wish it were better news for you, but just because you haven't been diagnosed doesn't mean we aren't still wondering how you're doing. Hang in there.
From one needle-phobe to another, my thoughts are with you.
N
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Postby peekaboo » Thu May 28, 2009 8:31 am

There are two other people on TIMS that I know of that have the flashing lights issue...you may was to PM radar22 ( a friend I itnroduced TIMS to) she has MS and many eye issues..test operations etc.

Hang in there
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Postby catfreak » Thu May 28, 2009 7:30 pm

There is our "Jules"!! we been missing you.

A second opinion is just what you need. Gather all your notes and test results before you go and be super prepared to ask many questions. And put that doc on the stand and make him explain everything.

Please join us more you have so much to share.

Hugs Hugs Hugs!!! :lol: :lol:

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby 71jules » Thu May 28, 2009 7:53 pm

:D Oh where do I start?

My heart has literally warmed up once more due to all your support guys and your kind thoughts. I did feel like I didn't have right to post any longer due to the MRI coming up with no answers. I still deep down feel all my symptoms are MS related and won't be surprised, well ok I will be shocked still thought that MS might be diagnosed down the track somewhere.
My symptoms are causing me so so many issues and pain and discomfort, I won't stop seeking answers as to what is going on.
The Neuro does know it is brain related.
Fingers crossed a new Neuro may shed some light for me.

I have an eye test booked for Wednesday next week and will post any results for you.

You all take care and I will keep in touch with you all.

Thanking you from the bottom of my heart once more for your support which words can not describe.

Hugs

Jules
xo
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Postby scorpion » Fri May 29, 2009 4:51 am

Hey Jules,

Thanks for keeping us updated. I would assume there are many of us on here who may not have a MS diagnosis but yet have many of the damn symptoms associated with the disease! There are also people on this site that do not have MS but offer great insight into research, clinical trials, etc. Welcome back and please continue to share your insight, thoughts, and fears with this awesome group of people many who have experienced exactly what you are going through now!
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Postby catfreak » Fri May 29, 2009 8:41 pm

Scorpian wrote:

Hey Jules,

Thanks for keeping us updated. I would assume there are many of us on here who may not have a MS diagnosis but yet have many of the damn symptoms associated with the disease! There are also people on this site that do not have MS but offer great insight into research, clinical trials, etc. Welcome back and please continue to share your insight, thoughts, and fears with this awesome group of people many who have experienced exactly what you are going through now!


Well said Scorpian, Well said....

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby 71jules » Mon Jun 01, 2009 4:04 am

Will do guys.

Just fighting a cold, what a way to bring in the first day of winter in OZ?

Take care.

Hugs
Jules
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