She has had extensive testing for seizures. When she had her first really bad episode she ended up in the hospital for 4 days. There they tested her for 24 hours on an EEG monitor with video. Then in January they tested her here at home with a 48 hour plus EEG with video monitors (that was fun let me tell you!). Both showed no signs of seizures.
She has also had numerous blood tests and was even sent to an encologist (also known as a hematologist - who knew?
) just to check for as many rare diseases and virus as they could. Her blood came back normal - well normal for her anyway lol.
I am really starting to think these are onset from stress. I've now seen quite a few and every time except the first time there was some "crisis" going on. This last time her doctors were really pushing her to take short term disability and probably long term disability. She really worried about that. So much she didn't sleep for 4 days and finally had a really bad black out episode. But at the same time I am not just going to drop it at that. I will keep bringing it up every time I see a doctor with her.
So my latest drama is she was faxed a copy of her latest MRI from three weeks ago. The report says compared to January's MRI she has numerous new lesions with 4-5 that they feel are very large. She has been on Capazone now since September. She has an appt with the neurologist next Thursday. Should we be looking to try something different? We are already examining the dietary ideas I have found here. They will be difficult since we have a growing, always hungry 11 year old boy around, but I am willing to try anything just about.
Also Thanks everyone for taking the time out to read and respond, it is very much appreciated!