This Is MS Multiple Sclerosis Community: Knowledge & Support

To answer your question about Vitamin D - there's been much research possibly linking low Vitamin D levels to the development of MS. Many people on this forum (me included) have had their Vitamin D levels tested, and they were found to be low. Now there are some studies looking at the therapeutic value of high doses of Vitamin D. It's generally believed that supplementing with Vitamin D may help prevent MS (a lot of good that does now, I know). Less clear is whether it helps those who already have MS. However, there isn't much to lose by taking some vitamin D everyday; it's inexpensive, and won't cause harm unless it builds up to toxic levels. How much to take is a tough call - the best way to figure this out is to be tested, and see where you fall. It was recommended to me that MS patients take 1000 IU's/day, along with 800 mg. of calcium. Many (me included) are taking levels much higher than this (4x to 6x).

As to the research studies, I don't know too much about the ones for progressive MS. You might want to check out the Drug Pipeline forum here:

http://www.thisisms.com/ftopict-5288.html

However, I would think that the primary consideration would be what Wash. U. has going on.

Hi John

Welcome to TIMS

If you want to participate in a clinical trial and your are either spms or ppms you know that these types are least favored for studies. Fortunately there are a few out there...you can go to clinicaltrials.gov and sort and filter by ms type, drug type, intervention type...you name it.

Depending on the trial...one may need to risk getting the placebo and then no action will be taken against ms...

There is a trial using vitamin D out there but we on TIMS ( and real professionals too) talk about the lack of Vitamn D in folks w/ms. this goes as far as stating folks living furthest from the equator are more likely dx'd with ms.

good luck in your search.

it all depends on what kind of medicare you have...some have a ppo, mine is an hmo...If your doc is not in their network...tough

Also you may need a referral from your pcp first they don't like self referrals...

My medicare primary insurer was picked by me from a list or providers by county...then there ratings and kinds of service they will supply...i chose an HMO so i didn't have to pay a monthly premium (way lower than retail) although there is a variety of pcp's and specialists the rules are stricker and may have less options.

hope this helps.

Holly

Medicare is considered the primary insurance. Some doctors accept Medicare payments and some do not - you need to find this out for yourself by asking the doctor. Your supplemental insurance could be an HMO (such as Holly's --- they usually restrict doctor choice by making you stay within a network) or the supplemental could be a PPO. I happen to have a PPO - costs more than the HMO but I am able to go to any doctor in any state as long as the doctor accepts Medicare payments. Medicare will pay approximately 80% of medical costs. The supplement should pay most of the remaining 20% IF you follow their terms (i.e. HMO or PPO)

Good luck
Sharon

thanks Sharon...you said it better than me and your spelling/typing well...way much better

John you wrote


If you sign up for Medicare it is always considered the primary
Sharon

Sharon

Then I do not understand, how did my other insurance deny my ability to select a doctor? Why do they have any power at all?

John

My husband has Medicare, but because I work, my insurance (he is on my insurance also) is considered his primary and his medicare is secondary.

If you are on your wife's insurance then maggiemae has a good point..If that is not the case. then i suspect that you have a medicare advantage policy and it being HMO like mine. I got approved after the fact. BAd headache while visiting my sister in CA