reading material-calling all elders

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

reading material-calling all elders

Postby reneelucia » Wed Jun 24, 2009 10:14 am

I've noticed that the books and articles written for patients with ms say the same things over and over ..
Then I try to read what the neuros are reading and I can't figure out what they are saying, that is if I can get into their websites.
Anyone have any books, websites, that aren't written for village idiots?
I've already been through everything published by the nat ms society. Like I said...its the same stuff over and over.
I'm a big why person...why is this stuff happening???????? what exactly is going on in there??????? what cures are on the horizon that aren't junk science????
Thank you,
Renee
User avatar
reneelucia
Family Member
 
Posts: 42
Joined: Sat Mar 21, 2009 3:00 pm
Location: pendleton, oregon

Advertisement

Postby Lyon » Wed Jun 24, 2009 12:23 pm

:roll: We've all gone through and continue to go through what you're experiencing so you have a lot of company, if that's any consolation.

Eventually you'll better understand the big words. At the same time you'll increasingly realize that it doesn't matter what the big words mean because the researchers don't understand MS. Their use of the big words only gives them a chance to put their college education to some use.

I think anyone's MS education should begin with an understanding of the history of MS, allergies, asthma and "autoimmune"/inflammatory diseases in general. I just typed "history of multiple sclerosis" into google and tons of interesting information came up and there are also multiple histories that you can buy or borrow from the library. A book that I and lyndacarol like is "Multiple Sclerosis: The History of a Disease" by Jock Murray, and it's available online if you can finagle "netlibrary" access through your state library...local college, etc??

With time, you'll notice that more and more peer review articles are becoming available to the people the information is drawn from and will impact
Lyon
Family Elder
 
Posts: 6063
Joined: Wed May 03, 2006 2:00 pm

Postby patientx » Wed Jun 24, 2009 4:21 pm

You might also want to try "Curing MS," by Howard Weiner. Although the title is somewhat of a tease, and after reading it, I think the author is a little arrogant (but that's just my opinion). It gives a pretty good recap of research into MS over the last 35 years, and th background behind some of the treatments. It is very readable.
User avatar
patientx
Family Elder
 
Posts: 1068
Joined: Wed Sep 10, 2008 2:00 pm

Postby catfreak » Wed Jun 24, 2009 6:44 pm

Renee,

Boy do I know where you are coming from! Just trying to comprehend some of this stuff gives me a headache. I am a who, what, when, where, why and how person too.

I purchased a book last year in Barnes and Noble (I think) and it was not very hard to read and understand. It may be too simple for you, depending on how much research you do. It is: Multiple Sclerosis, Everything You Need to Know, Revised Edition. It explains a lot of stuff without being "out there" or to "big wordy". It helped me kind of get a grasp of MS.

I am sure you can get it at the local library or order from Amazon.

Good luck reading.

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
User avatar
catfreak
Family Elder
 
Posts: 791
Joined: Sun Jun 01, 2008 2:00 pm
Location: Mississippi


Return to General Discussion

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service