Thyroid problems and MS

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Thyroid problems and MS

Postby Alicia » Wed Jul 01, 2009 5:14 pm

Hi,

I recently went in for a physical exam and had some bloodwork done. They called be back today and told me my thyroid levels were off and to come in for more tests, that this could be related to an autoimmune disorder. She asked me if I had been feeling lethargic lately. I told her I don't think I could tell the difference. I always fell tired from the MS. This thyroid deal coupled with the other health problems I have been having lately is making me feel picked on. Has anyone else had thyroid problems related to their MS?

Thanks,

Alicia
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Postby Lyon » Wed Jul 01, 2009 6:16 pm

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Last edited by Lyon on Sat Nov 26, 2011 11:37 am, edited 1 time in total.
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Postby LR1234 » Thu Jul 02, 2009 2:23 am

I have Hashimotos as well. I did have high antibodies to my thyroid but now the LDN and or abx seems to have sorted that as they have returned to normal!! (I am having my bloods checked again next week)
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Postby Alicia » Sun Jul 05, 2009 10:49 am

Hi,

I would like to thank you for your responses. I don't live by any of the great lakes.

Thanks,

Alicia
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Postby jimmylegs » Sun Jul 05, 2009 11:22 am

hi alicia do you know what your iron and zinc levels are?
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Postby lmacalus » Wed Jul 08, 2009 6:45 pm

I hear y'all on feelin "picked on" - I've thrown on a good 30+ lbs in about twice as many days - no change to diet & low & behold my thyroid is abnoramally "enlarged". labs were drawn yesterday & ultrasound is scheduled for Friday... what next? I'll post the levels 7 results when I get them back. Sadly, I am glad to see I am not alone on this one... has anyone actually seen the weight come off at all... my MD cautioned that once my levels are corrected at best I can hope to lose a pound a month... thus it would take well over a year to get back to baseline - not accounting for fatigure, etc already associated with the MS. Geesh if I was depressed before!
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Postby me_x_5 » Wed Jul 15, 2009 1:36 pm

HELLO,I have not been diagnosed yet with MS but Ive had hyper thyroidism during and after I had my son in 07-08,then everthing with MS started 09.And jeeze yeah picked on is the right word.When my thyroid stuff got really bad,I ended up in the ER because I could not even pick my head up off my couch I was like a zombie,with 0 energy.And i had a 1 year old and a new baby!!OMG I thought I had cancer or something,but couldnt even get help to see,Im alot better now,I have to get test done every 3 0r 4 months and my test are always 1 or 2 point different than the last!!
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Postby coach » Wed Jul 15, 2009 6:07 pm

First diagnoxed with probable MS in 1984 after birth of first child (ON). Then 4 years later about 1 year after the birth of my second child I was diagnosed with Graves disease. Resolved with Rx treatment of PTU. Once my throid levels were brought into the normal range, my cholestrol went up to about 230 and has stayed in that range ever since. Normal triglycerides though.
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Postby Alicia » Thu Jul 16, 2009 2:40 am

Sorry, I have not checked this post in a while I have been busy dealing with my doctor about thyroid issues. I am so confused about this thyroid problem. I was wondering if any of you could tell me how high your TSH level was when your doctor started treating you. I am getting conflicting information from my doctors office and I am not sure what my next step should be. My TSH in 2001 was 2.69 and now it is 4.63. My Free T3 is 282 and Free T4 is 1.2. I have been told that yes I do have antibodies that are attacking my thyroid and no that I do not. Yes if I were treated for this I would feel better or I could just leave it alone because it was within a normal range. Come and follow up with more bloodwork to see if anything has changed in 8 weeks or 4 months. I have a hard enough time making decisions in the first place and this is enough to really confuse me. I am thinking I should see someone different that knows a little bit more about thyroids, but who? Should I try for a different general physician or someone more specialized like an Endocrinologist? Or should I just give up and leave it alone? I am tired and have a handful of other symptoms that have to do with thyroid disease but most of the symptoms I have could also be MS symptoms. If I were placed on a medication for this other than bloodwork I don't know how I would ever tell if the meds were working. I had a complete blood work test done and nothing was said to me about having low zinc or iron levels. I do take a multivitamin every day. Any thoughts?

Thanks,

Alicia
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Time for an endocrinologist

Postby lyndacarol » Thu Jul 16, 2009 4:45 am

Alicia and others--A good General Practice physician can handle problems, testing, etc. with the thyroid; but if you are not satisfied with his answers, it is time to see an endocrinologist. Start at the beginning, ask for retesting of the related thyroid hormones, and while you are at it, ask to have a "fasting serum insulin test." (That is INSULIN, not glucose.) I think that excess insulin has an important role in many "autoimmune" diseases.
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Postby whyRwehere » Thu Jul 16, 2009 9:08 am

I have a theory that the lesions MSers might get in their brain, affect the pituitary gland which sends the hormones to the thyroid. I thought this was an interesting article:
http://www.nytimes.com/2004/12/05/magaz ... NOSIS.html
and maybe that is why LDN helps with MS:
http://grande.nal.usda.gov/ibids/index. ... row=203919
Not like the most scientific proof, but just a little thought, so I mention it.
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Postby jimmylegs » Mon Aug 10, 2009 12:22 pm

alicia, mx5, forgive me for not checking in on this earlier.. but have either of you had vitamin d3 bloodwork done?
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Postby me_x_5 » Mon Aug 10, 2009 11:30 pm

NO, I HAVE NEVER HAD THAT DONE,AND I CANT EVEN FIND MY PAPERS ON MY TEST BUT I WILL AND POST,OK,THEN YOU SEE MY LEVELS.
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Postby jimmylegs » Tue Aug 11, 2009 9:07 am

ok good i'll keep an eye out for that
you know to test 25 hydroxyvitamind3
NOT
1,25 dihydroxyvitamind3
right me?
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Postby Alicia » Tue Aug 11, 2009 8:57 pm

No, I have not been tested for vitamin D3.

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