I'm so sorry you're having such a rough time.
It's not fair, is it? I mean, not only does MS totally
suck, but so do most of the treatments!
And of course if there was a proven, safe treatment for MS that was 100% effective for everyone, you'd be fine, I'd be fine, and we wouldn't need this website!
But do not give up. This is really a much
better time to be an MS patient than it was when you were diagnosed. We've got Tysabri now, as of a couple of months ago, and of course LDN, and numerous other promising treatment modalities (like antibiotics, etc. ) Surf around this site and others so you can read other patients' experiences with them.
As for your question (which wasn't dumb at all
, by the way), I doubt there's any way to know with any certainty whether the Avonex is making you worse
, unless you d/c it and get miraculously better, which I wouldn't expect or recommend.
But it seems obvious to this non-physician that you're on the wrong medication.
Maybe it was the right med for you in the past, but it sure seems that Avonex simply isn't working for you anymore at all (if it ever did
), and that your MS is doing it's thing as if you were untreated.
And, as Deb said, (hi deb
!), it sounds possible
that you might not have RRMS, but a progressive form. Or maybe you do
still have RRMS. But regardless you obviously need to be on something
I hope you can get an appt with an MS specialist who takes your insurance very soon. Bless your heart, you really need some help
; obviously more than we can give.
This is all just my opinion of course, worth exactly what you paid for it, but if I were you I'd try the Tysabri if it's offered by the next doc . It's brand new, so it's kind of an unknown, but it has a very impressive track record from the one year trial, reputed to work twice
as well as the CRABs do, without serious side effects for most patients.
Personally, I'm also pinning hopes on Tysabri, having failed Avonex and
Copaxone. But if my insurance won't cover Tysabri, I'm definitely calling Dr. Bihari ASAP! I considered trying LDN along with
the Tysabri, if
it's OK to combine them, but decided not to regardless because I'd rather try one thing at a time to see what, if anything, works.
Anyway, I hope you get some effective help soon. Hang in there!