Interesting article Lyon, I hadn't seen this one - thanks. Overall I found it helpful. I don't know you but know you have a reputation of being forthright. So, are you trying to tell me I'm a psych case?!
Don't answer that please!
Actually some of the sections touched on a few of my concerns -- I have some early peripheral polyneuropathy that's unaccounted for. My journey started with Rheumatologists and a couple of Neurologists before making it to an MS Neurologist. Even when I started suspecting MS, I was careful not to say that and just to see where they went with things. I realized that there were many lesser known conditions similar to MS. And, I just want to find out what's kicking my ass! Something is although gratefully I note that my flare has been ever so slowly receding. I think my concern at this time is that if she's not feeling sold enough on my case to recommend CRABS, maybe I should go back to a generalist and shake the tree some more. And, concerned with what appears to be some residual loss of function.
Kay, thanks for the post. Actually I've been pretty persistent in my discussions with the N. She does get the impact of my symptoms on daily life and acknowledged that my presentation was more challenging on a daily basis than many of her classic early-mid stage patients. So...then...?
Is the fact that your symptoms don't present in tight acute episodes the main factor for your N viewing the behavior as atypical? Hope you're doing well after the spine surgery -- that would complicate things -- sounds painful.
Appreciate bouncing this off folks as I figure out my next steps.