Karazhan, pain is also my most debioitating sx right now, mostly I think because the neurontin I'm on fo rhte pain makes me so 'cognitively challenged) (read that stupid...), that I'm not noticing too much else.
It is difficult, but not impossible to have your Docs work in concert. I've done that lately, it works for me.
I've brought up pain at every neuro visit, and not gotten much response. I don't think that their training is as pt oriented as is a GP's. It's much more disease tx. pain in ms is something they can't do too much about..maybe that frustrates neuros, who knows.
I asked my GP if he would be willing to co-manage my health needs and tx, he's all for it.
One of the problems I've found is that if you have a very particular sx, like your leg pain, that is not in your neuro's experience, he may be likely to write it off as not related to ms in a neurological way. And maybe in a sense he's right, BUT it may be related to MS in a physiological way in that perhaps your gait has changed, and that has lead to leg pain.
My neuro ignored that fact that I had a blinding headache for 2 years. honestly he didn't even respond when I brought it up. I took it upon my self to see a pain specialist who did an occipital nerve block and poof, no headache.
On retrospect I do have 2 good sized lesions on my cervical spine, and have developed a kinda hunchy, shoulders drawn up posture, so, in a sense it's traces back to MS, but it's not MS.
Does that make sense to anyone? Most times I'm sure of what I want to say in my brain, and it doen't come out my fingers!!---------------------
Be kinder than necessary, for everyone you meet is fighting some kind of battle..