Hi, new attack only 4 months after first attack

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Hi, new attack only 4 months after first attack

Postby miss_moose31 » Sun Aug 02, 2009 8:54 pm

Isn't this too soon for another attack? Is something else wrong? My first attack was this past March, 2009. I was on solumedrol infusions for 5 days, got "better", started Rebif. Stopped Rebif within 2 weeks due to massive suicidal thoughts. Didn't want to go back on a medication, but ended up going on Copaxone last month. I realize that Copaxone has not been in my system long enough to be effective yet.

But the VERY DAY I started the Copaxone shots, I started getting tingling, strange temperature sensations in my thighs and arms, then I got dizzy and wobbly. I figured all side effects of Copaxone so I didn't call anyone. After day 5, I called Shared Solutions, they had me call my doctor.

Doc said, "nope, not side effects, let's see whats going on". He put me back on solumedrol that same day (for 5 days straight) and ordered MRIs in the morning. It's the weekend now, so I havent seen the doc. I looked at the MRI disk and my brain looks all spotty and it's scaring me.

Is it normal to have attacks so close together??? I was hoping for at least a few years apart! At this rate, I'll be a vegetable in a year or two. What can I do? Im scared shitless. Can the attacks start to get further apart? Or is this my fate and progression??
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Re: Hi, new attack only 4 months after first attack

Postby Bubba » Sun Aug 02, 2009 9:22 pm

miss_moose31 wrote: Is it normal to have attacks so close together??? I was hoping for at least a few years apart! At this rate, I'll be a vegetable in a year or two. What can I do? Im scared shitless. Can the attacks start to get further apart? Or is this my fate and progression??


Normal? Nothing is normal with MS. Not trying to be a smartazz, but its the truth.
My neuro said I could have my next relaps in 2 days, 2 weeks, or 20 years!!!
What can you do? Stick right beside your neuro, be proactive, and read/learn as much as you can...
Mostly, try to focus your attention on something else you love to do and do it. I know its easier said than done, but you have to not "freak out" but rather take it one day at a time, and make the best of it. :(
Pay attention to what you put in your body as well. I am a believer in a proper MS diet. Not one in particular, but a good gluten free diet with vitamins and minerals...
BTW... I try to stay gluten free. I cant, but I try to pay attention and limit my gluten intake. Beer is my downfall!
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Postby paul2008 » Mon Aug 03, 2009 9:42 am

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