mad

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

mad

Postby robbie » Tue Aug 04, 2009 8:45 am

i am just so mad at what my life has become, my wife and i were just figuring it all out, relationship, money everything and now i jusy don't even know if i'll make it through living like this. we all have different points of no more and i'm at mine. i feel like i am so pissed off at ms that it is changing me for the worse emotionaly not just phically, fuck i feel trapped.
Had ms for over 19 years now.
User avatar
robbie
Family Elder
 
Posts: 1148
Joined: Thu Jan 27, 2005 4:00 pm
Location: Northern Ontario, Canada

Advertisement

Postby peekaboo » Tue Aug 04, 2009 9:29 am

Hi Robbi - yes ms sucks and for people like us who are dependent on others to live independently...But you can't give up...look into the different states of grief. It is normal to have these types of thoughts as long as you do not obsess on them. find work sheets on grief management that may help you cope...

High Altitude Hugs to ya!

Holly
User avatar
peekaboo
Family Elder
 
Posts: 623
Joined: Sun Feb 08, 2009 4:00 pm
Location: Arizona

Postby Punchy » Tue Aug 04, 2009 11:20 am

I suspect any chipper "cheer up, be grateful, make life changes!" advice I could give you would only further irritate and piss you off (as it would me), so all I can say is, that blows and I hope things start to shift for you soon, Robbie.

And I still think you're really good looking (even though you're like, wayyyy older than me). :oops:
User avatar
Punchy
Family Elder
 
Posts: 165
Joined: Tue Mar 06, 2007 4:00 pm
Location: Toronto, Canada

Postby Loobie » Tue Aug 04, 2009 12:20 pm

You know my advice dude, get a couple of good movies or some sports, fire up the bong and ride this stage out. Other that that you know I won't say "it'll get better" or anything like that. It just fucking sucks that you are in this spot right now. I know what you mean about getting to where you have some peace of mind only to have the ground yanked out from under you. No words can help other than I love you man, hang in there.
User avatar
Loobie
Family Elder
 
Posts: 2196
Joined: Mon Sep 11, 2006 3:00 pm
Location: Dayton, Ohio USA

Postby Wonderfulworld » Tue Aug 04, 2009 12:56 pm

MS is a cruel disease. It is just cruel.

I wish I could say something that would help lift you Robbie....but having been just briefly at EDSS 9 I know what my honest thoughts were and they were very dark and bleak. I too hope that this phase does give you a break soon and that some good stuff happens for you.
~~~~~~~~~~~~~~~
Concussus Resurgo
~~~~~~~~~~~~~~~
RR-MS dx 1998 and Coeliac dx 2003
~~~~~~~~~~~~~~~
Copaxone, Cymbalta. EPO, Fish Oils, Vitamin D3 2000 IU daily, Cal/Mag/Zinc, Multivitamin/mineral, Co-Enzyme Q10, Probiotics, Milk Thistle.
Wonderfulworld
Family Elder
 
Posts: 773
Joined: Sun Aug 27, 2006 3:00 pm
Location: Ireland

Postby Lyon » Tue Aug 04, 2009 1:05 pm

.
Last edited by Lyon on Sat Nov 26, 2011 11:01 am, edited 1 time in total.
Lyon
Family Elder
 
Posts: 6063
Joined: Wed May 03, 2006 3:00 pm

Postby robbie » Tue Aug 04, 2009 1:40 pm

i stopped taking the extra, 5 days into it, it seemed to make me feel better at the higher dose but not so much at 30 mg a day where i stayed for those extra days. i have stopped now and feel extra shitty, i don't know if you come down from prednisone even when you tapper off of it but it sure feels that way. i thought of trying some doxycycline for the anti-inflammatory affect of it. i think you could take that longer than steroids.
Had ms for over 19 years now.
User avatar
robbie
Family Elder
 
Posts: 1148
Joined: Thu Jan 27, 2005 4:00 pm
Location: Northern Ontario, Canada

Postby ElMarino » Tue Aug 04, 2009 1:57 pm

I know just how you feel
User avatar
ElMarino
Family Elder
 
Posts: 154
Joined: Mon Mar 02, 2009 4:00 pm

Postby Lyon » Tue Aug 04, 2009 2:09 pm

.
Last edited by Lyon on Sat Nov 26, 2011 11:01 am, edited 1 time in total.
Lyon
Family Elder
 
Posts: 6063
Joined: Wed May 03, 2006 3:00 pm

Postby Chris55 » Wed Aug 05, 2009 8:18 am

I wish you would my Suzy's supplement treatment a try..(sigh)...
User avatar
Chris55
Family Elder
 
Posts: 300
Joined: Mon May 24, 2004 3:00 pm

Postby Chris55 » Wed Aug 05, 2009 8:19 am

Oops--I mean I wish you would give it a try...I would buy it for you...
User avatar
Chris55
Family Elder
 
Posts: 300
Joined: Mon May 24, 2004 3:00 pm

Postby robbie » Wed Aug 05, 2009 8:29 am

thanks chris i am going to try the doxy and see.
Had ms for over 19 years now.
User avatar
robbie
Family Elder
 
Posts: 1148
Joined: Thu Jan 27, 2005 4:00 pm
Location: Northern Ontario, Canada

Postby dignan » Wed Aug 05, 2009 10:21 am

Robbie, I think giving the doxy a shot sounds like a really good idea.
User avatar
dignan
Family Elder
 
Posts: 1608
Joined: Wed Aug 11, 2004 3:00 pm

Postby me_x_5 » Wed Aug 05, 2009 11:17 am

I love loobies advise,oh wow,no offence but that straight to the point,and im gonna try to remember it.
User avatar
me_x_5
Family Member
 
Posts: 56
Joined: Sun Apr 12, 2009 3:00 pm
Location: Washington State

Postby robbie » Wed Aug 05, 2009 11:58 am

some sports, fire up the bong and ride this stage out.

sounds good lew, thanks punchy
glad i can vent here, need to sometimes
Had ms for over 19 years now.
User avatar
robbie
Family Elder
 
Posts: 1148
Joined: Thu Jan 27, 2005 4:00 pm
Location: Northern Ontario, Canada

Next

Return to General Discussion

Who is online

Users browsing this forum: ElliotB