This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Thu May 23, 2013 1:14 am


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 6 posts ] 
Author Message
PostPosted: Wed Aug 05, 2009 2:38 pm 
Offline
Family Elder
User avatar

Joined: Sat May 17, 2008 3:00 pm
Posts: 265
Location: Chicagoland
I was hoping for some input.
i will be taking part in an educational conference for MSerrs.
We've got a couple of speakers lined up, nutritionist, neurologist, exercise pro....but I was wondering what topic you would like to see a presentation about. i have options like CAM, social services (negotiating ins issues etc), safety issues..(like fall proofing your home). Choosing a healthcare team...

What would you guys like to see discussed...? I want this to be really meaningful to those with the disease...

_________________
Be kinder than necessary, for everyone you meet is fighting some kind of battle..


Top
 Profile  
 
 Post subject:
PostPosted: Wed Aug 05, 2009 5:11 pm 
Offline
Family Elder
User avatar

Joined: Wed Sep 10, 2008 3:00 pm
Posts: 1068
Msanything:

I'd be willing to give you some input, but what tone are you trying to set.? Is it more of a company line type of thing, or are you looking for honest discussion like goes on here at TIMS?


Top
 Profile  
 
 Post subject:
PostPosted: Wed Aug 05, 2009 5:43 pm 
Offline
Family Elder
User avatar

Joined: Sat May 17, 2008 3:00 pm
Posts: 265
Location: Chicagoland
no company line at all, big pharma is not involved, no outside pressure at all. I'd like content to be driven by interest level of the target audience like tims is, there will be a panel Q & A session as well.
The tone I am trying to set is taking charge of chronic disease to the extent possible, so each speaker will represent what part the can take as a member of a health care team treating the person with ms.


Top
 Profile  
 
 Post subject:
PostPosted: Sun Aug 09, 2009 9:15 am 
Offline
Family Elder
User avatar

Joined: Wed Sep 10, 2008 3:00 pm
Posts: 1068
Msanything:

Sorry for coming off a little cynical. One thing I would like to hear from neurologist is what criteria he uses for prescribing a DMD. The standard line I often hear is that they are all the same, it just depends on how often you want to inject, what side effects you want. But the interferons and Copaxone are so different, I don't understand how they can really say this. I'd also like to hear a presentation on new therapies, like Cladribine, Fingolimod, Campath, etc.

Form the nutritionist, I would want to hear what diet/supplement changes he or she recommends and why.


Top
 Profile  
 
 Post subject:
PostPosted: Sun Aug 09, 2009 11:33 am 
Offline
Newbie
User avatar

Joined: Thu Apr 09, 2009 3:00 pm
Posts: 4
Is this conference going to happen in the Chicago area? And if it is when do you plan on holding it?


Top
 Profile  
 
 Post subject:
PostPosted: Sun Aug 09, 2009 12:46 pm 
Offline
Family Elder
User avatar

Joined: Sat May 17, 2008 3:00 pm
Posts: 265
Location: Chicagoland
Welcome JimmyTG, it will be held in Barrington (on the Metra Northwest Line) at Advocate Good Shepherd Hospital. They have allowed use of their conference rooms (and their staff) for no cost or expectations.
The MS Foundation will be providing lunch and covering other ancillary costs. Please Come!!
It will be december 5th, a saturday.
I am very excited to meet fellow msers in the Chicago area...
Colleen (the Irish)

_________________
Be kinder than necessary, for everyone you meet is fighting some kind of battle..


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 6 posts ] 

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Chicagoland educational conference Dec 5th

msmything

8

1128

Thu Nov 12, 2009 5:08 am

msmything View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: