educational conferrence...

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educational conferrence...

Postby msmything » Wed Aug 05, 2009 2:38 pm

I was hoping for some input.
i will be taking part in an educational conference for MSerrs.
We've got a couple of speakers lined up, nutritionist, neurologist, exercise pro....but I was wondering what topic you would like to see a presentation about. i have options like CAM, social services (negotiating ins issues etc), safety issues..(like fall proofing your home). Choosing a healthcare team...

What would you guys like to see discussed...? I want this to be really meaningful to those with the disease...
Be kinder than necessary, for everyone you meet is fighting some kind of battle..
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Postby patientx » Wed Aug 05, 2009 5:11 pm

Msanything:

I'd be willing to give you some input, but what tone are you trying to set.? Is it more of a company line type of thing, or are you looking for honest discussion like goes on here at TIMS?
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Postby msmything » Wed Aug 05, 2009 5:43 pm

no company line at all, big pharma is not involved, no outside pressure at all. I'd like content to be driven by interest level of the target audience like tims is, there will be a panel Q & A session as well.
The tone I am trying to set is taking charge of chronic disease to the extent possible, so each speaker will represent what part the can take as a member of a health care team treating the person with ms.
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Postby patientx » Sun Aug 09, 2009 9:15 am

Msanything:

Sorry for coming off a little cynical. One thing I would like to hear from neurologist is what criteria he uses for prescribing a DMD. The standard line I often hear is that they are all the same, it just depends on how often you want to inject, what side effects you want. But the interferons and Copaxone are so different, I don't understand how they can really say this. I'd also like to hear a presentation on new therapies, like Cladribine, Fingolimod, Campath, etc.

Form the nutritionist, I would want to hear what diet/supplement changes he or she recommends and why.
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Postby jimmythegreek » Sun Aug 09, 2009 11:33 am

Is this conference going to happen in the Chicago area? And if it is when do you plan on holding it?
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Postby msmything » Sun Aug 09, 2009 12:46 pm

Welcome JimmyTG, it will be held in Barrington (on the Metra Northwest Line) at Advocate Good Shepherd Hospital. They have allowed use of their conference rooms (and their staff) for no cost or expectations.
The MS Foundation will be providing lunch and covering other ancillary costs. Please Come!!
It will be december 5th, a saturday.
I am very excited to meet fellow msers in the Chicago area...
Colleen (the Irish)
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