OddDuck wrote: I went back to investigate a couple of things, and you know what I noticed? The NMSS MUST have at least consulted with some researchers regarding your inquiries because their "notice" on their website regarding the use of LDN is signed like this:
Clinical Programs Department
in collaboration with
Allen Bowling, MD, PhD
Rocky Mountain MS Center
Anybody write to the Rocky Mountain MS Center or Dr. Allen Bowling? It looks like THEY (he) might be the ones who need convincing!
As a one-time patient of Dr. Bowling's, I can tell you first hand that writing him, or his research staff (Tom Stewart), about LDN will get no response. Dr. Bowling is a fine physician, and his research results do gather wide peer support; however, like the majority of the medical industry, their research is suspect.
I say "suspect" because instead of following-up positive events, factual events like an improvement of physical ability and a reduction in lesion volume, they excuse it as an anomoly because it doesn't fall into the agreed upon, and trusted, MS theory.
I mean, come on; we have all seen the information sheet included with any of our ABCR drugs that show that MS without treatment will gradually cause the patient to progress up the EDSS scale. With treatment, it's expected that the patient will continue up the EDSS scale; however, with the currently approved therapies, at a slower rate.
So, what would you expect if they found a patient that wasn't going up the scale as expected? As a research professional (non-medical) factual events always have more weight than theory, no matter how widely supported the theory may be. Not so in the medical industry. What should be questioned isn't; instead, it's explained to preserve the integrity of the theory.
As a guy who studied entirely too much Mathematics in college (I do have a minor), don't even get me started on statistical findings: does anybody know anything about Fibonacci and Golden proportions other than us finance geeks or math freaks?
Deb, have you ever seen how the standard deviation of a clinical trial is calculated?