Lesion Load
- RevLeonidas
- Family Member
- Posts: 34
- Joined: Tue Nov 02, 2004 3:00 pm
Lesion Load
What have your MRI's shown?
...could you please cut and past the poll and fill in the blanks?
Thanks,
Rev. Leonidas
...could you please cut and past the poll and fill in the blanks?
Thanks,
Rev. Leonidas
- RevLeonidas
- Family Member
- Posts: 34
- Joined: Tue Nov 02, 2004 3:00 pm
I was diagnosed in 2004
I have had 2 MRI's taken.
Since my first MRI ... n/a
I am currently taking Rebif
First MRI was just of my head, it showed approximately 20 lesions. Second MRI was of my neck (less thna a month later) and it showed two large active lesions. Those were both used for diagnosis. I'm not sure what you mean by 'lesion load'.
I have had 2 MRI's taken.
Since my first MRI ... n/a
I am currently taking Rebif
First MRI was just of my head, it showed approximately 20 lesions. Second MRI was of my neck (less thna a month later) and it showed two large active lesions. Those were both used for diagnosis. I'm not sure what you mean by 'lesion load'.
-
- Family Elder
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- Joined: Thu Jun 17, 2004 2:00 pm
- Location: Bedfordshire UK
- Contact:
I was diagnosed in 2003
I have had 3 MRI's taken.
Since my first MRI, each one has shown a big decrease in lesion load, with no new lesions and no active ones. Some smaller ones on the outer edge of the brain have disappeared completely.
I am currently taking antibiotics for C Pn.
I had numerous large lesions in the head, nowhere else, and was considered untreatable by the Addenbrookes based neurologist.
Sarah.
I have had 3 MRI's taken.
Since my first MRI, each one has shown a big decrease in lesion load, with no new lesions and no active ones. Some smaller ones on the outer edge of the brain have disappeared completely.
I am currently taking antibiotics for C Pn.
I had numerous large lesions in the head, nowhere else, and was considered untreatable by the Addenbrookes based neurologist.
Sarah.
Last edited by SarahLonglands on Sat Jan 22, 2005 7:38 am, edited 1 time in total.
- Lab_Rat
- Getting to Know You...
- Posts: 16
- Joined: Sun Oct 31, 2004 3:00 pm
- Location: A dirt road in West Michigan
I was diagnosed in August, 2003
I have had 9 MRI's taken. -As part of the clinical trial I'm enrolled in I had an option to have monthly MRI's for the first 6 months.
Since my first MRI, each has shown a(n) increase/decrease in lesion load. -Significant decrease. For the MRI which diagnosed me the radiologist didn't even bother counting the lesions, just noted that they were numorous as there were so many which was a tad frightening for someone freshly diagnosed. Since my initial dose with Campath in October of '03 all lesions have become inactive as shown on MRI, and some of the smaller ones have disappeared altogether.
I took Campath for 1.5 years; I am currently taking Campath. -Trial is still in progress.
I have had 9 MRI's taken. -As part of the clinical trial I'm enrolled in I had an option to have monthly MRI's for the first 6 months.
Since my first MRI, each has shown a(n) increase/decrease in lesion load. -Significant decrease. For the MRI which diagnosed me the radiologist didn't even bother counting the lesions, just noted that they were numorous as there were so many which was a tad frightening for someone freshly diagnosed. Since my initial dose with Campath in October of '03 all lesions have become inactive as shown on MRI, and some of the smaller ones have disappeared altogether.
I took Campath for 1.5 years; I am currently taking Campath. -Trial is still in progress.
I was diagnosed in _1999___
I have had __3 MRI's taken.
Since my first MRI, each has shown a(n) increase in lesion load.
; I am currently taking __AVONEX, AND WAITING FOR APPROVAL FOR TYSABRI
I HAVE TO SAY THOUGH, I HAVE BEEN ON THE AVONEX FOR 8 MONTHS NOW, AND HAVENT HAD A MRI IN THAT TIME, SO I DONT KNOW IF IT HAS HELPED WITH LESION ACTIVITY
I have had __3 MRI's taken.
Since my first MRI, each has shown a(n) increase in lesion load.
; I am currently taking __AVONEX, AND WAITING FOR APPROVAL FOR TYSABRI
I HAVE TO SAY THOUGH, I HAVE BEEN ON THE AVONEX FOR 8 MONTHS NOW, AND HAVENT HAD A MRI IN THAT TIME, SO I DONT KNOW IF IT HAS HELPED WITH LESION ACTIVITY
I was diagnosed in 2003
I have had 3 MRI's taken.
Since my first MRI, each has shown a decrease in lesion load.
I am currently taking nothing.
I had 2 MRIs when I was dx, one of my head the other my spine. I was having a major flare up at the time - no feeling in my entire body and I could not move my left leg. MRIs showed numerous brain lesions and 2 lesions on my spine. I was given 40 mg intravenous dexamethasone for 3 days. In 3 weeks I made a good recovery. My follow up MRI taken Dec 15 2004 (head only) showed everything stable. I still have some mild reduction in feeling.
I have had 3 MRI's taken.
Since my first MRI, each has shown a decrease in lesion load.
I am currently taking nothing.
I had 2 MRIs when I was dx, one of my head the other my spine. I was having a major flare up at the time - no feeling in my entire body and I could not move my left leg. MRIs showed numerous brain lesions and 2 lesions on my spine. I was given 40 mg intravenous dexamethasone for 3 days. In 3 weeks I made a good recovery. My follow up MRI taken Dec 15 2004 (head only) showed everything stable. I still have some mild reduction in feeling.
Tim
Lesion load
I was diagnosed in Dec 1997.
I have had 6 MRI's taken, including one full-body MRI.
Since my first MRI, each has shown an increase in lesion load and atrophy.
I took Avonex for 5 1/2 years, since May 1998 (365 injections and still counting). Have also had a few steroid treatments.
I am currently taking Avonex + CellCept + Tizanidine + Aricept, waiting on Biogen person to schedule 1st Tysabri infusion.
I have had 6 MRI's taken, including one full-body MRI.
Since my first MRI, each has shown an increase in lesion load and atrophy.
I took Avonex for 5 1/2 years, since May 1998 (365 injections and still counting). Have also had a few steroid treatments.
I am currently taking Avonex + CellCept + Tizanidine + Aricept, waiting on Biogen person to schedule 1st Tysabri infusion.
What have your MRIs shown?
I was diagnosed in _Jan 2005___ (Hubby)
I have had _3_ MRI's taken.
Since my first MRI, each has shown a(n) increase/decrease in lesions) First MRI had one lesion(1998) (1999 had no new lesions) 2005 had 4 new lesions.
I took __________ for __ years; I am currently taking ___copaxone sine July 4 2005__________.
View Results
I was diagnosed in _Jan 2005___ (Hubby)
I have had _3_ MRI's taken.
Since my first MRI, each has shown a(n) increase/decrease in lesions) First MRI had one lesion(1998) (1999 had no new lesions) 2005 had 4 new lesions.
I took __________ for __ years; I am currently taking ___copaxone sine July 4 2005__________.
View Results
- lady_express_44
- Getting to Know You...
- Posts: 20
- Joined: Fri Sep 03, 2004 2:00 pm
- Location: Vancouver, BC, Canada
I was diagnosed in April, 2002.
I have had 3 MRI's taken, all of Brain + C-Spine.
Since my first MRI, each has shown an increase in lesion load - From 4 Brain lesions on original MRI to 6 Brain lesions on second MRI 2 years later. Most recent MRI shows NO new lesions (hooray!) but one has grown in diameter. None have ever enhanced with Gad dye.
I took Rebif for 1.5 years; Then I got pregnant and had a baby.
I am currently taking Betaseron.
Alyssa
I have had 3 MRI's taken, all of Brain + C-Spine.
Since my first MRI, each has shown an increase in lesion load - From 4 Brain lesions on original MRI to 6 Brain lesions on second MRI 2 years later. Most recent MRI shows NO new lesions (hooray!) but one has grown in diameter. None have ever enhanced with Gad dye.
I took Rebif for 1.5 years; Then I got pregnant and had a baby.
I am currently taking Betaseron.
Alyssa
- Katman
- Family Elder
- Posts: 264
- Joined: Mon Jul 11, 2005 2:00 pm
- Location: North Carolina USA
- Contact:
MRI poll
I was diagnosed in July 2004
I have had 4 MRIs. 2 were pre-dx.
The last one- about 6 months into antibiotics- was "no worse" The first 3 were each worse than the 1 previous.
I have been taking Avonex exactly 1 year (I am PP) and David Wheldon's regimen since late Sept 2004. I have had 2 courses of Solumedrol.
Katman
I have had 4 MRIs. 2 were pre-dx.
The last one- about 6 months into antibiotics- was "no worse" The first 3 were each worse than the 1 previous.
I have been taking Avonex exactly 1 year (I am PP) and David Wheldon's regimen since late Sept 2004. I have had 2 courses of Solumedrol.
Katman
2010 5 years 4 months Now on Amoxicillin, Doxy, Rifampin, Azith, and caffeine in addition to flagyl. 90% normal good days-50% normal bad days. That is a good thing.
- Katman
- Family Elder
- Posts: 264
- Joined: Mon Jul 11, 2005 2:00 pm
- Location: North Carolina USA
- Contact:
Re: Lesion Load
I don't know and can't find (but have seen!) cut and paste. Please use my information as it may be helpful. Interesting poll.RevLeonidas wrote:What have your MRI's shown?
...could you please cut and past the poll and fill in the blanks?
Thanks,
Rev. Leonidas
2010 5 years 4 months Now on Amoxicillin, Doxy, Rifampin, Azith, and caffeine in addition to flagyl. 90% normal good days-50% normal bad days. That is a good thing.
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