Lesion Load

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

What have your MRIs shown?

I was diagnosed in ____
1
100%
I have had __ MRI's taken.
0
No votes
Since my first MRI, each has shown a(n) increase/decrease in lesion load.
0
No votes
I took __________ for __ years; I am currently taking _____________.
0
No votes
 
Total votes : 1

Lesion Load

Postby RevLeonidas » Fri Jan 21, 2005 12:13 pm

What have your MRI's shown?

...could you please cut and past the poll and fill in the blanks?

Thanks,
Rev. Leonidas
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Postby RevLeonidas » Fri Jan 21, 2005 12:17 pm

I was diagnosed in 1997
I have had 3 MRI's taken.
Since my first MRI, each has shown adecrease in lesion load.
I took Avonex for 6 years; I am currently taking LDN.
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Postby namaah » Fri Jan 21, 2005 12:25 pm

I was diagnosed in 2004
I have had 2 MRI's taken.
Since my first MRI ... n/a
I am currently taking Rebif


First MRI was just of my head, it showed approximately 20 lesions. Second MRI was of my neck (less thna a month later) and it showed two large active lesions. Those were both used for diagnosis. I'm not sure what you mean by 'lesion load'.
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Postby SarahLonglands » Sat Jan 22, 2005 5:49 am

I was diagnosed in 2003

I have had 3 MRI's taken.

Since my first MRI, each one has shown a big decrease in lesion load, with no new lesions and no active ones. Some smaller ones on the outer edge of the brain have disappeared completely.

I am currently taking antibiotics for C Pn.

I had numerous large lesions in the head, nowhere else, and was considered untreatable by the Addenbrookes based neurologist.


Sarah.
Last edited by SarahLonglands on Sat Jan 22, 2005 8:38 am, edited 1 time in total.
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Postby Lab_Rat » Sat Jan 22, 2005 8:16 am

I was diagnosed in August, 2003

I have had 9 MRI's taken. -As part of the clinical trial I'm enrolled in I had an option to have monthly MRI's for the first 6 months.

Since my first MRI, each has shown a(n) increase/decrease in lesion load. -Significant decrease. For the MRI which diagnosed me the radiologist didn't even bother counting the lesions, just noted that they were numorous as there were so many 8O which was a tad frightening for someone freshly diagnosed. Since my initial dose with Campath in October of '03 all lesions have become inactive as shown on MRI, and some of the smaller ones have disappeared altogether.

I took Campath for 1.5 years; I am currently taking Campath. -Trial is still in progress.
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Postby MOMTO3 » Sat Jan 22, 2005 7:17 pm

I was diagnosed in _1999___
I have had __3 MRI's taken.
Since my first MRI, each has shown a(n) increase in lesion load.
; I am currently taking __AVONEX, AND WAITING FOR APPROVAL FOR TYSABRI


I HAVE TO SAY THOUGH, I HAVE BEEN ON THE AVONEX FOR 8 MONTHS NOW, AND HAVENT HAD A MRI IN THAT TIME, SO I DONT KNOW IF IT HAS HELPED WITH LESION ACTIVITY
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Postby Red » Sun Jan 30, 2005 8:01 pm

I was diagnosed in 2003
I have had 3 MRI's taken.
Since my first MRI, each has shown a decrease in lesion load.
I am currently taking nothing.

I had 2 MRIs when I was dx, one of my head the other my spine. I was having a major flare up at the time - no feeling in my entire body and I could not move my left leg. MRIs showed numerous brain lesions and 2 lesions on my spine. I was given 40 mg intravenous dexamethasone for 3 days. In 3 weeks I made a good recovery. My follow up MRI taken Dec 15 2004 (head only) showed everything stable. I still have some mild reduction in feeling.
Tim
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Lesion load

Postby batpere » Mon Jan 31, 2005 7:12 am

I was diagnosed in Dec 1997.
I have had 6 MRI's taken, including one full-body MRI.
Since my first MRI, each has shown an increase in lesion load and atrophy.
I took Avonex for 5 1/2 years, since May 1998 (365 injections and still counting). Have also had a few steroid treatments.
I am currently taking Avonex + CellCept + Tizanidine + Aricept, waiting on Biogen person to schedule 1st Tysabri infusion.
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Postby Melody » Thu Aug 04, 2005 11:02 am

What have your MRIs shown?
I was diagnosed in _Jan 2005___ (Hubby)
I have had _3_ MRI's taken.
Since my first MRI, each has shown a(n) increase/decrease in lesions) First MRI had one lesion(1998) (1999 had no new lesions) 2005 had 4 new lesions.
I took __________ for __ years; I am currently taking ___copaxone sine July 4 2005__________.


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Postby lady_express_44 » Thu Aug 04, 2005 11:49 am

My first big attack was in 1991.
I was officially diagnosed in Aug, 2003.
I have had 1 brain MRI and it showed 2 lesions. (I think most of my lesions are in my spine).
Since my MRI (2003), I have had no additional disability.
I took nothing for 14 yrs, and LDN since May/05.

Cherie
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Postby Mollysmom » Fri Aug 05, 2005 8:45 pm

I was diagnosed in April, 2002.
I have had 3 MRI's taken, all of Brain + C-Spine.
Since my first MRI, each has shown an increase in lesion load - From 4 Brain lesions on original MRI to 6 Brain lesions on second MRI 2 years later. Most recent MRI shows NO new lesions (hooray!) but one has grown in diameter. None have ever enhanced with Gad dye.
I took Rebif for 1.5 years; Then I got pregnant and had a baby.
I am currently taking Betaseron.

Alyssa
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Postby carolsue » Sat Aug 06, 2005 7:47 am

I was diagnosed in 2004
I have had 3 MRI's taken. (brain and brainstem)
Since my first MRI, each has shown NO NET CHANGE in lesion load. (maybe one was a little bigger, maybe one was a little smaller).
I have been taking Rebif for 16 months.
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MRI poll

Postby Katman » Sat Aug 06, 2005 11:13 am

I was diagnosed in July 2004

I have had 4 MRIs. 2 were pre-dx.

The last one- about 6 months into antibiotics- was "no worse" The first 3 were each worse than the 1 previous.

I have been taking Avonex exactly 1 year (I am PP) and David Wheldon's regimen since late Sept 2004. I have had 2 courses of Solumedrol.

Katman
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Re: Lesion Load

Postby Katman » Sat Aug 06, 2005 11:19 am

RevLeonidas wrote:What have your MRI's shown?

...could you please cut and past the poll and fill in the blanks?

Thanks,
Rev. Leonidas


I don't know and can't find (but have seen!) cut and paste. Please use my information as it may be helpful. Interesting poll.
2010 5 years 4 months Now on Amoxicillin, Doxy, Rifampin, Azith, and caffeine in addition to  flagyl. 90% normal good days-50% normal bad days. That is a good thing.
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Postby DenverCO » Sat Aug 06, 2005 2:55 pm

Dx 1997
4 MRI's
"Evolution but not progression" (some new lesions come, some old ones go)

Most of my problems are spinal cord related. I've only had one MRI that included the spine, and I moved alot so the films weren't clear.
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