kathryn6112 wrote:My opthamologist has set me up to have an MRA on Friday, as he is not 100% convinced this is optic neuritis, since I am not having any significant pain
That sort of seems like a loaded assumption. By that I mean what is significant pain? When I fractured my wrist or shut a car door on my finger that was certainly significant pain. However, when I had optic neuritis, I just had some pressure behind my eye which was annoying (and maybe felt a little sore) but not really painful.
...and he expected the 6 doses of IV steroids to have given me some improvement by now.
That might be a better measure. The IV steroids that I received helped me regain some of my eyesight back after a few of days. You said that you have lost your eyesight, but what does it look like when you look out of the affected eye? Is it just dark or is it hazy? When I had optic neuritis, my vision was clouded over in one eye but I could still perceive light and colors. It was like I had just opened up a hot dishwasher after it was done running and only one side of my glasses fogged over and stayed that way. I should note that I experienced slow, gradual improvements in my vision for a week or two afterwards. In addition, my eye remained heat sensitive for several months afterwards. For example, it would cloud over again temporarily if I took a shower that was too hot or spent too much time out on a hot day.