My beautiful lady has just applied for her disability in FLA and had her first interview.
She was diagnosed with RRMS earlier this year.
She had left work on temporary disability just last month. The temporary disability has yet to start (mid next month.) She isn't on unemployment.
No insurance and Medicaid won't cover her because of the temporary disability to come.
We recently paid for an MRI and bloodwork out of pocket. My family helped us to have this done.
Within the last month and a half her doctor informed her that her MS/lesions progressed 3 years in 3 months.
I'm on unemployment as well. (hopefully to change very soon but you never know.)
Between us we have a combined 5k in the bank (to LIVE on.)
Our wonderful government has asked for a NEW MRI(without contrast) (do they think the lesions are just going to disappear?), NEW bloodwork, Psych Eval. and at least one other test. All this redundancy comes to a whopping 4k they expect us to just have hanging around to flush down the toilet again.
Oh, and she's on Rebif at the max dosage. We know what that costs.
SO . . . .
My question is . . . . Any suggestions on how to fight through this. Ways we can get the testing done for a more reasonable cost without ending up sleeping under a bridge? Other avenues? Organizations that can help? Clinics for the testing?
Sounds like we have 5 weeks to get all this done. We're on the clock.
Please, any suggestions????? Yes, now we are desperate.