I have alot neuropathic pain, all legs, calves in particular, and forearms. It very hard to describe, even if you don't care about sounding insane.
Everywhere on me is numb, but painful. I can take one particular area and massage it to change the sensation there temporarily. Sometimes I fing myself just kinda rocking back and forth on the couch. I find it the hardest thing to describe even to those who treat it or have it. At work I concentrate on not pulling my arms up into a contracture position and flexing, it makes the pain change.
I just got out of the hospital where I had a candyland of medications on demand..I had dilauded 1mg q4 IV, norco 1 q4 po, fiosumthin( a barbiruate)? IV tid while receiving solumedrol, xanax PRN po, neurontin 400mgs po tid, ambien 12.5QHS, then they tried a fentanyl patch.
It's true, opiods are not a good treatment for neuropathic pain. It never went away. I didn't care so much, but i still found myself rocking some.
I had started to mess with my neurontin 'cause it was making my thinking so dull, I'll never do that again. I'm building back up to 1800 mgs a day. So that, and having the 'perfect storm' of a relapse, I was in pain that caused me to be chewing the inside of my lips and breaking into cold sweats.
For me neurontin seems to be the key to dealing with this absolutely disabiling symptom. tried the mag, cal and other supps, still sticking with them just in case.
Also, swimming seems to help..alot..but I can't even miss one day.
I had asked the Neuro what the pain IS, is it death of nerves or what, he said it is phantom pain. WHA?
I hope I didn't talk your ears off, I wanted to let you know you're not alone..