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scorpion
 Post subject: Fampridine another flop?
PostPosted: Fri Oct 09, 2009 7:23 am 
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You have got to be f###### kidding me. I think moving to a cabin in the woods and letting whatever happens happen is looking like a good option.


http://www.bloomberg.com/apps/news?pid= ... xJwE07QFq8
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Sharon
 Post subject:
PostPosted: Sat Oct 10, 2009 9:19 am 
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What a disappointment!!! :x Many MS'rs were looking forward to the drug coming on the market (even thought it was going to cost you an arm and a leg!)

Sharon
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Lyon
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PostPosted: Sat Oct 10, 2009 10:50 am 
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Last edited by Lyon on Sat Nov 26, 2011 9:53 am, edited 1 time in total.

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scorpion
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PostPosted: Sat Oct 10, 2009 11:00 am 
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hmmmmmmmmm
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ellen
 Post subject: fampridine
PostPosted: Sat Oct 10, 2009 12:40 pm 
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To the FDA... I want to TRY this drug.....it may work, it may not, but please, at least give me the opportunity to try it at my OWN risk!!! I tried to get in a trial 5 years ago and was told I walked too well. Now I don't walk that well. Just let me TRY it. Very frustrating when I am willing to risk it.

Ellen
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Lyon
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PostPosted: Sat Oct 10, 2009 12:52 pm 
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Last edited by Lyon on Sat Nov 26, 2011 9:47 am, edited 1 time in total.

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CureOrBust
 Post subject: Re: fampridine
PostPosted: Sat Oct 10, 2009 3:44 pm 
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ellen wrote:
To the FDA... I want to TRY this drug.....it may work, it may not, but please, at least give me the opportunity to try it at my OWN risk!!! I tried to get in a trial 5 years ago and was told I walked too well. Now I don't walk that well. Just let me TRY it. Very frustrating when I am willing to risk it.
I found a local compounding pharmacist that made LDN for MS'rs, gave them some documents off the net on 4AP, spoke to my GP (this is where I think I was very lucky), and within a few weeks I had a slow release compounded 4AP.

Depending on where in the world you are, there may be a pharmacist that already compounds it for others. Mine had never heard of it before, but easily sourced it from the USA.
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jay123
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PostPosted: Tue Oct 13, 2009 4:55 pm 
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Yes, it can be compounded easily. My doctor (the late great Dr. Jacobs of the jacobs clinic) was prescribing it 10 years ago. It didn't help me at all though.
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