A first for me, has this happened to you?

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A first for me, has this happened to you?

Postby LoveActually » Tue Oct 13, 2009 7:17 pm

Hello Everyone!

The one symptom I really can't handle is vertigo. But right now, it feels like my eyes are moving really fast from left to right. It'll last for about 10 seconds and then goes away for 20 seconds or so. Then it'll come right back.

I don't feel dizzy so I'm not associating it with vertigo. And the movements are short and fast. Anyone else ever experience this?
October 29, 2009 - Dx with RRMS
June 22, 2010 - Dx's changed to Devic's (NMO)
January 4, 2011 - Dx w/Syringomyelia T4-T9, Migraines, and Possible MS (again - long story)
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Postby Bubba » Wed Oct 14, 2009 12:32 am

Daily... :(
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Re: A first for me, has this happened to you?

Postby NHE » Wed Oct 14, 2009 1:55 am

If I remember correctly, Loobie has posted several times about vertigo. You may want to search the forum and read through some of his posts. There have also been some other posts where folks have found certain eye exercises to be helpful.

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Postby Loobie » Wed Oct 14, 2009 3:47 am

If you look up all the different things that ON can do; eye soreness, eye socket issues, I believe that the rapid eye movement thing you're describing is also in that bag of fun. Not sure, but if you go to http://mult-sclerosis.org, there is a great deal of information on ON. That site was a great resource for me at the beginning. The guy who made the site hasn't updated in a long time as he also has MS and it could have become too much for him, but you might start there. That's where I first went when all I had were eye issues and that's where I came to the conclusion I probably had MS.
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Postby euphoniaa » Wed Oct 14, 2009 4:17 am

Hi LA, sorry you're dealing with this. Loobie's right about the site he gave, but the link didn't work for me. It's a great suggestion, though. Here's one to the page on eye issues in general: http://www.mult-sclerosis.org/mssymptoms.html

And here's a link to the page there about nystagmus, which is jerky eye movements:
http://www.mult-sclerosis.org/nystagmus.html

Nystagmus is rapid, involuntary movements of the eyes which is often unnoticeable to people with the complaint. To others it resembles the eye movements when someone is looking at the scenery from the window of a moving train. Usually it occurs in the horizontal plane but it can also affect the vertical.


That's one of the few named symptoms my neuro could actually notice in one of my exams (I've never even been dx'd with ON), although I've whined to her about dozens. :) It must be so minor in my case it doesn't seem to bother me.

Hope you find a lot of answers at that site.
Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)
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Postby Terry » Wed Oct 14, 2009 4:22 am

Sounds like nystagmus.

Nystagmus is an involuntary rhythmic shaking or wobbling of the eyes.



Nystagmus can be acquired later in life due to neurological dysfunction such as a head injury, multiple sclerosis or brain tumors. Unlike nystagmus acquired from early in life, patients with late onset nystagmus usually notice movement in their vision related to the movement of their eyes. This is called oscillopsia. Oscillopsia causes a person to have vertigo or dizziness related to the new movement they experience in their vision.


I have it occasionally. Usually when I'm tired, I think. I don't have vertigo with it, though. My eyes just do their dance and then get back to normal. MS is such a bag of goodies, isn't it? Hoping it goes away for you or at least lessens.
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Postby scorpion » Wed Oct 14, 2009 4:54 am

It generally comes and goes. I had vertigo two years ago for about 3 weeks but since then I rarely get it but it still sucks when the "spins hit". My guess is it will be a temporary thing. Ask your doctor or neuro if there is some exercises you can do to help with the vertigo. You are not alone LoveActually!!!!
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Postby Wonderfulworld » Wed Oct 14, 2009 6:43 am

Oh you poor thing, this is one of the most horrible symptoms. Very disorientating.,
I had a very acute attack of it 11 years ago and I did find exercises useful for re-training my sense of balance.

This link has a further link half way down the page to exercises online: http://www.webmd.com/brain/balance-exer ... or-vertigo

HTH
~~~~~~~~~~~~~~~
Concussus Resurgo
~~~~~~~~~~~~~~~
RR-MS dx 1998 and Coeliac dx 2003
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Copaxone, Cymbalta. EPO, Fish Oils, Vitamin D3 2000 IU daily, Cal/Mag/Zinc, Multivitamin/mineral, Co-Enzyme Q10, Probiotics, Milk Thistle.
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Postby LoveActually » Wed Oct 14, 2009 11:15 am

Thank you so much everyone. And thanks for the links, I'll get to reading shortly. I'm assuming that ON stands for optic neuritis? Sorry, still learning all the abbreviations for everything. I'll have the VEP test for that one soon.

It lasted only 20 minutes last night but immediately following I got a terrible headache. I went to bed early and woke up feeling ok this morning.

Vertigo was what started all of this in May. I had it for more then 24 hours and 4 hours in I went to my GP who gave me those dreadful words, "You may have MS". We talked about some other symptoms I was having but I thought he was totally wrong. Unfortunately, everday it's lookin' more and more like he may be right.
October 29, 2009 - Dx with RRMS
June 22, 2010 - Dx's changed to Devic's (NMO)
January 4, 2011 - Dx w/Syringomyelia T4-T9, Migraines, and Possible MS (again - long story)
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Postby jimmylegs » Wed Oct 14, 2009 7:22 pm

i strongly second the idea of nystagmus, LA.
b1 is likely implicated.
if your b12 is chronically low it can mess with the rest of the complex.
try a good strong b100 complex, with an extra 200mg b1, every day for a week.
hopefully that will put a stop to it, and at that level should not cause nausea.
HTH,
JL
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