Whats your favorite phrase?

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

Whats your favorite phrase?

Postby scorpion » Wed Oct 14, 2009 5:49 pm

There are phrases I hear and read over and over again relating to MS research that drive me crazy. I thought, to lighten things up a little, we could all list some of the phrases we have all come to know and love. My personal favorite is :

"HOLDS PROMISE FOR THE TREATMENT OF MS"
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Postby Lyon » Wed Oct 14, 2009 6:03 pm

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Last edited by Lyon on Thu Nov 24, 2011 11:21 am, edited 1 time in total.
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Postby Terry » Wed Oct 14, 2009 7:12 pm

Not research, but the neuros love to say:

"We are going to treat this aggressively."
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Postby gibbledygook » Thu Oct 15, 2009 4:33 am

"It's never been a better time to get MS."
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,
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Postby Loobie » Thu Oct 15, 2009 5:09 am

Ditto on Alex's comment. That's what I was going to say. My wife's aunt who has had it since the early 80's says they were saying that back then!
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Postby Mike56 » Thu Oct 15, 2009 8:58 am

From my Neuro

"you definitly have a demyelinating disease, but I can't tell you it's MS for sure. I'll schedule another MRI for 6 months from now"
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Postby scorpion » Thu Oct 15, 2009 10:51 am

Mike56's comment brings to mind my meeting with my first neuro after I had suffered three weeks of vertigo.


"This is definitely not neurological."
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Postby euphoniaa » Thu Oct 15, 2009 11:03 am

"Well, you have definite MS, so pick a drug - it doesn't matter which one."
Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)
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Postby scoobyjude » Thu Oct 15, 2009 2:03 pm

One that makes me cringe and want to punch well-meaning people when they say this

"What doesn't kill us makes us stronger"

I'm freakin' strong enough already, thank you
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Postby scorpion » Thu Oct 15, 2009 3:05 pm

Since I started the thread I get more then one, rights?

"Researchers identify promising therapeutic target"
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Postby patientx » Thu Oct 15, 2009 4:46 pm

"Don't worry, oral meds will be available soon."

And everyone's favorite:

"In the EAE, the mouse model of MS...."
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Postby Terry » Thu Oct 15, 2009 5:03 pm

"The Skeptics"
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Postby CRHInv » Thu Oct 15, 2009 6:41 pm

OH MY!

"It's never been a better time to get MS."

They really say this????? That is outrageous!!!!
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Postby euphoniaa » Fri Oct 16, 2009 9:04 am

I remembered one reason why the MS med info didn't persuade me to try any of them:

These quotes are copied and pasted directly from official med guides:

--AVONEX® will not cure multiple sclerosis (MS)...
--AVONEX® can cause serious side effects...
--The way AVONEX® works in MS is not known.
--Safety and efficacy of treatment with AVONEX® beyond 3 years is not known.


--Rebif will not cure multiple sclerosis (MS)...
--Rebif can cause serious side effects...
--The way Rebif works in MS is not known.
--The safety and efficacy of treatment with Rebif® beyond 2 years have not been established.


--Betaseron will not cure multiple sclerosis (MS)...
--Betaseron can cause serious side effects...
--The way Betaseron works in MS is not known.


--TYSABRI does not cure MS or Crohn’s disease...
--TYSABRI increases your chance of getting a rare brain infection that usually causes death or severe disability.
--The specific mechanism(s) by which TYSABRI exerts its effects in multiple sclerosis and Crohn’s disease have not been fully defined.
--TYSABRI has not been studied for use longer than 2 years.


--COPAXONE is not a cure...
--The mechanism(s) by which glatiramer acetate exerts its effects in patients with MS are not fully understood.
Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)
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Postby jml945 » Fri Oct 16, 2009 9:10 am

"It's probably all due to anxiety"
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