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scorpion
PostPosted: Wed Oct 14, 2009 5:49 pm 
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There are phrases I hear and read over and over again relating to MS research that drive me crazy. I thought, to lighten things up a little, we could all list some of the phrases we have all come to know and love. My personal favorite is :

"HOLDS PROMISE FOR THE TREATMENT OF MS"
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Lyon
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PostPosted: Wed Oct 14, 2009 6:03 pm 
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.


Last edited by Lyon on Thu Nov 24, 2011 11:21 am, edited 1 time in total.

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Terry
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PostPosted: Wed Oct 14, 2009 7:12 pm 
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Not research, but the neuros love to say:

"We are going to treat this aggressively."
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gibbledygook
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PostPosted: Thu Oct 15, 2009 4:33 am 
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"It's never been a better time to get MS."

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3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,
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Loobie
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PostPosted: Thu Oct 15, 2009 5:09 am 
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Ditto on Alex's comment. That's what I was going to say. My wife's aunt who has had it since the early 80's says they were saying that back then!

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Mike56
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PostPosted: Thu Oct 15, 2009 8:58 am 
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From my Neuro

"you definitly have a demyelinating disease, but I can't tell you it's MS for sure. I'll schedule another MRI for 6 months from now"
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scorpion
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PostPosted: Thu Oct 15, 2009 10:51 am 
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Mike56's comment brings to mind my meeting with my first neuro after I had suffered three weeks of vertigo.


"This is definitely not neurological."
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euphoniaa
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PostPosted: Thu Oct 15, 2009 11:03 am 
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"Well, you have definite MS, so pick a drug - it doesn't matter which one."

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Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS or MS symptoms except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)
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scoobyjude
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PostPosted: Thu Oct 15, 2009 2:03 pm 
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One that makes me cringe and want to punch well-meaning people when they say this

"What doesn't kill us makes us stronger"

I'm freakin' strong enough already, thank you
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scorpion
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PostPosted: Thu Oct 15, 2009 3:05 pm 
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Since I started the thread I get more then one, rights?

"Researchers identify promising therapeutic target"
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patientx
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PostPosted: Thu Oct 15, 2009 4:46 pm 
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"Don't worry, oral meds will be available soon."

And everyone's favorite:

"In the EAE, the mouse model of MS...."
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Terry
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PostPosted: Thu Oct 15, 2009 5:03 pm 
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"The Skeptics"
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CRHInv
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PostPosted: Thu Oct 15, 2009 6:41 pm 
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OH MY!

"It's never been a better time to get MS."

They really say this????? That is outrageous!!!!
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euphoniaa
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PostPosted: Fri Oct 16, 2009 9:04 am 
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I remembered one reason why the MS med info didn't persuade me to try any of them:

These quotes are copied and pasted directly from official med guides:

Quote:
--AVONEX® will not cure multiple sclerosis (MS)...
--AVONEX® can cause serious side effects...
--The way AVONEX® works in MS is not known.
--Safety and efficacy of treatment with AVONEX® beyond 3 years is not known.


Quote:
--Rebif will not cure multiple sclerosis (MS)...
--Rebif can cause serious side effects...
--The way Rebif works in MS is not known.
--The safety and efficacy of treatment with Rebif® beyond 2 years have not been established.


Quote:
--Betaseron will not cure multiple sclerosis (MS)...
--Betaseron can cause serious side effects...
--The way Betaseron works in MS is not known.


Quote:
--TYSABRI does not cure MS or Crohn’s disease...
--TYSABRI increases your chance of getting a rare brain infection that usually causes death or severe disability.
--The specific mechanism(s) by which TYSABRI exerts its effects in multiple sclerosis and Crohn’s disease have not been fully defined.
--TYSABRI has not been studied for use longer than 2 years.


Quote:
--COPAXONE is not a cure...
--The mechanism(s) by which glatiramer acetate exerts its effects in patients with MS are not fully understood.

_________________
Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS or MS symptoms except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)
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jml945
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PostPosted: Fri Oct 16, 2009 9:10 am 
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"It's probably all due to anxiety"
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