Hey There Again, Thank you so much
Oh trust me. I do all I can to live the best life possible but I'm so ANTI MS and I really can't even stand the thought of it. I know..I know
Even when I go to get my Tysabri..I do not like being around the other MS patients. I stay in a recliner far away from the rest. Usually I"m coming off night shift ( I'm a Nurse) and so I just want to sleep the treatment away but mostly its because all I hear is DEPRESSING stuff. They are all on disability in that group. They all go on and on about it and it drives me crazy.
I just want to do the best I can everyday and night to fight this monster not cave into it.
I'm nice to everyone but soon as I get their the IV Nurses know...I will find my corner, get my IV and go to sleep. They are awesome to me too.
I had one lady shocked I was still working as a Nurse and the intensity of my particular field. She told me I would easily qualify for disability.....
I don't want to be on disability. God forbid I may need it later down the road but for now I can walk, I can move and even when I can't...I force myself too. I'm not caving into this monster as much as it wants to take my life from me. NO WAY!
The only thing is I wish I had a better Neuro. She's good but I can't see her. I have not seen her in a year. I'm pawned off on her PA because their practice is SO overly busy. I have an appt with her November 9th but that was an appt made in Oct 2008. How insane is that. But the IV Nurses and Center are awesome and they help me. As for the Neuro I have an issue pending with them right now but details on that later.
Oh....one more question. Do you get that tingling wierd sensation feeling as if almost like the chills or something? What is that? I run a fever here and there but this is not those kind of chills. Its the strangest stuff.
My main stuff is that, the pain in the legs/hips and that feeling of heaviness like my legs are pure lead. My right side is weaker and the fatigue is bad. They had me on Provigal but I stopped a month later. I am on a low dose of Adderall. I take only that and Tysabri and something for pain here and there but rare.
I do notice my grip is not good when I try to open a jar or something. I don't have the same strength as before.
Thanks for your help. I really do appreciate it.
I have always been given more help here than from my Neuro.