Can disability be prevented?

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Can disability be prevented?

Postby sou » Mon Oct 26, 2009 11:35 am

Hi all.

I have been studying about MS for 10 years. I have almost reached the conclusion that there are hardly any means to prevent disability in MS, in the long term.

Is there anything PROVEN to prevent disability in a period of, let's say, 15-20 years?

What I have found so far is the Swank diet. CCSVI is promising, but it has to prove itself. It will, in my humble opinion.

Is there any specific reason about why we take all these dangerous trash-drugs? MS is enough suffering. Why add another?

sou
Shortest joke: "We may not be able to cure MS but we can manage its symptoms."
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Postby Terry » Mon Oct 26, 2009 2:32 pm

Sou,
I don't think there is anything that guarantees to keep us from disability. Funny, I was thinking about this today. I wondered what have I done to keep disability away, and the only answer I came up with was that I have NOT done the crabs drugs. Silly, I know, but I think they may have more chance of harm that good. (just my opinion)
I have read some new (to me) MS blogs lately and realize the severity of disability that this disease can cause. (I knew already, but have a way of ignoring it.) I read and must digest and come to terms with the possibilities.
I watch the CCSVI info also, but wonder if fixing the jugs is enough. Especially with the info of "less veins in the brain", I wonder if increasing blood flow from the brain will be a long term fix.
All we can do is our best. The best for me will not be the same as for others. That has been clear to me.
My best to you. You exude a special kindness that has reached me in Cincinnati.
Don't lose faith.
Terry
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Postby sou » Mon Oct 26, 2009 4:31 pm

Thank you for your reply.

Actually, when I say prevent disability, I am not speaking about 100% prevention. I wonder if by taking all this stuff available could possibly make you less disabled than you would have been if you didn't take anything at all.

So far, my conclusion is no. Disability can't be prevented, at all. If you don't get it in the form of relapses you will get it by a slow progression inbetween, but without the very acute phase, which can be managed by steroids or plasmapheresis.

sou
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Postby Terry » Mon Oct 26, 2009 5:30 pm

I'm unsure about bacteria as a cause. But...if we are leaking stuff from the blood to the brain (breaching the BBB) , then...antibiotics would remove bacteria out of what is leaked. Helpful? Probably.
Keeping iron levels low? Maybe? To allow as little as possible through the BBB. (Jimmylegs would say no on this one)
Nutrition.
That's all I have. Certainly not much.
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Postby RedSonja » Tue Nov 03, 2009 2:53 am

There is plenty of evidence that the drugs help some of us. (No guarantee that you are one.) But if you think all drugs are trash then you will not be trying them anyway.

Doing nothing does not help in any way.

Try and keep fit, follow a healthy diet, avoid stress. No guarantees there either. Life is a bummer sometimes.
Bibo ergo sum
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