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Postby LR1234 » Mon Nov 02, 2009 4:52 pm

I have heard that too but seeing as I have not had one shot yet of the stuff I have no idea!!
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Postby Absentee » Mon Nov 02, 2009 5:49 pm

you can actually leave a weeks worth of Copax out at a time at room temp. Cold medicine won't feel good! Autoject is good - takes some of the guessing out of the game.

Shared Solutions (TEVA's MS support group) is sending a nurse out for your first shot, right?
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Postby pager » Mon Nov 02, 2009 6:37 pm

Having the nurse come out is key! You want to inject the Copaxone at room temp so I do take out a week at a time and leave it in the little kit.

LA, you can do this! I know you can!! And, just remember, each day it does get easier!!! Promise!
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Postby patientx » Mon Nov 02, 2009 6:40 pm

LoveActually wrote:LR,

I read somewhere that it feels better if you take the dose out of the fridge a few hours before you administer. True?


Actually, that's almost universally recommended. Absentee is right - the cold medicine don't feel so good. And like he (or she) mentioned, i just take a few out of the refrigerator at once.

But I like Lew's idea. He's right; if you get used to the 1 1/4" intramusclular needle, the subq will look tiny.
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Postby LoveActually » Tue Nov 03, 2009 10:27 am

I believe Lew about the "if you get used to the 1 1/4" intramusclular needle, the subq will look tiny" but I don't wanna find out for myself. I'm sure he understands. :)

Absentee - Yes, the nurse is coming out for my first shot. She said once I get the meds and autoject to give her a call.

Thanks for the tip about taking a weeks worth out. I'll definitely do that.
October 29, 2009 - Dx with RRMS
June 22, 2010 - Dx's changed to Devic's (NMO)
January 4, 2011 - Dx w/Syringomyelia T4-T9, Migraines, and Possible MS (again - long story)
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Postby Johooper » Tue Nov 03, 2009 1:36 pm

Sorry about your dx.

About the injections, I have used both Avonex and am currently on copaxone. I find the copaxone injections hurt more than the Avonex. Your pain sensors are on the surface of the skin so the bigger needle doesn't make a difference really. Its the stuff that stings. I am one of the lucky few that ddint get any reaction to Avonex absolutely nothing from day 1. I switched to copaxone because we believed I had NAB to Avonex. I dont make a big thing of it, I stuck a sticker on my auto inject with where to do the jab each day so I dont forget whats next. My bum hurts the most, my tummy the easiest, I get occasional bruising and occasional small lumbs, dont use alchohol wipes just jab and go. My daughter does my arms for me she is 15. My son who is a nurse is worse LOL and I do the others myself.

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Postby catfreak » Thu Nov 05, 2009 9:14 pm

LA, So sorry about the DX. But now you can start meds. I did Rebif (YUK!!!) for 8 months, I had site reactions and extreme fatigue from it. No flu like symptoms but the fatigue was unbearable. Now on Tysabri and had the CCSVI procedure.

I wish you the best with Copaxone. The injections were not as bad as I thought they would be and self injecting was so much easier for me. I think is was the POP of the auto injector that got to me.

Hang in there!

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9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby LoveActually » Fri Nov 06, 2009 11:27 am

I think is was the POP of the auto injector that got to me.


Thanks for the warning Cat. I just got everything in yesterday and I'm waiting for the nurse to give me a call back to set up an appointment.

I've been considering the CCSVI procedure but we'll see. One thing at a time. :)
October 29, 2009 - Dx with RRMS
June 22, 2010 - Dx's changed to Devic's (NMO)
January 4, 2011 - Dx w/Syringomyelia T4-T9, Migraines, and Possible MS (again - long story)
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Postby jimmylegs » Fri Nov 06, 2009 12:59 pm

i still haven't bothered with any of the shots or anything for RRMS!
got more used to needles since dx what with all the bloodwork though :S hehe
i guess even tho it's a different kettle of fish taking meds as opposed to giving blood for tests, i would think you'll probably find the needle bugs you less in time too, good luck
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Postby scoobyjude » Fri Nov 06, 2009 2:23 pm

I think is was the POP of the auto injector that got to me.


Me too Cat, although at first I liked the autoinjector. I had one bad experience and gave up on it. Everyone's different though LA. You may think it's way easier to use the autoinjector but let me assure you that I never thought I'd be able to manually inject and it is a piece of cake. Either way you will be fine. Hopefully you won't have to worry about needles too long anyway. Remember, better things are one their way.( I have to keep saying that to remind myself :D )
Dxed Jan 2006. Sx since 2002. Rebif since March 2006. "When one door closes, another opens but we often look so long and so regretfully upon the closed door that we do not see the one which has opened for us." Alexander Graham Bell
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