Diagnosis Is In

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Diagnosis Is In

Postby LoveActually » Thu Oct 29, 2009 7:35 pm

I'll make this quick.

There was one lesion on my spine, my EEG was normal so my first neuro was wrong when she said I was having seizures. The results for the VEP weren't back yet but he said that wouldn't make a difference either way.

I do have MS and was given 4 huge binders full of info for each CRAB drug.

More later.
October 29, 2009 - Dx with RRMS
June 22, 2010 - Dx's changed to Devic's (NMO)
January 4, 2011 - Dx w/Syringomyelia T4-T9, Migraines, and Possible MS (again - long story)
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Postby me_x_5 » Thu Oct 29, 2009 11:30 pm

Wow , well how do feel !! Just a question ?
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Postby MrsGeorge » Fri Oct 30, 2009 4:18 am

Sorry to hear it but at least you have an answer now.
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Postby pager » Fri Oct 30, 2009 7:50 am

Wow LA, what a long road it has been for you! I am so glad that you finally have answers!!! Do you feel some relief with a diagnosis? Now you can have a plan, which will help you and your hubby feel a bit more in control.

You are a very strong young woman and seem to handle things amazingly well. Especially having small children and working too. (I don't do so well in handling things.)

My advice is go with your intuition on the DMTs and it is overwhelming at times when you are trying to figure out what to do. When I began the injections, it felt like my illness was really in my face, that I couldn't get away from the fact of my MS. The Copaxone daily injections are so much easier now (like they told me it would be) after about 4-5 months. I am still struggling with the sx of the disease...some days are better than others.

LA, just keep posting and receiving support from this group. We all do understand, especially those of us that are women with young children trying to do many tasks, even when we really just wanted to curl up on the couch and rest.
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Postby cheerleader » Fri Oct 30, 2009 8:35 am

Hey LA,
so sorry. Even if you're "prepared" for the diagnosis, it's still a huge shock. Please keep asking questions and know you've got a dedicated group of caped crusaders here at TIMS, ready to support you.
xoxo,
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby dignan » Fri Oct 30, 2009 9:25 am

LA, sorry to hear about your diagnosis. I would never say that an MS diagnosis isn't a big deal, BUT as you have seen on this site, there are a lot of reasons for hope out there.
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Postby Sharon » Fri Oct 30, 2009 10:56 am

LA - it has been a long ordeal for you trying to find an answer.
You wrote on June 3, 2009
Now on to the reason why I love ThisIsMS. On May 5, 2009 my doc said, "I'm going to refer you to a neurologist, sound's like you have MS." This is after going through a few of my symptoms with him. I've been experiencing symptoms since my late teens and after researching I learned that I have many more symptoms that point towards MS.

You now have an answer - you exude a very positive attitude in your life - this is going to help you get through.

Sharon
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Postby scoobyjude » Fri Oct 30, 2009 1:39 pm

LA, I know the dx may bring some answers and closure but I'm so sorry you have to join our club. I want to assure you that life does go on after MS. There will even be moments where you will forget you it. I know that probably seems impossible right now but it's true. I thought I would never stop crying but you learn to accept and move on. You are a very strong person and you will be fine. Life can still be what you want it to be even with a few minor disruptions. Hang in there.
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Postby Lyon » Fri Oct 30, 2009 1:46 pm

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Last edited by Lyon on Thu Nov 24, 2011 10:56 am, edited 1 time in total.
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Postby scorpion » Fri Oct 30, 2009 5:04 pm

Sorry about your diagnosis but I am glad you finally got an answer. You WILL work through all your mixed feelings and emotions and get on with life. Promise.
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Postby LoveActually » Fri Oct 30, 2009 6:12 pm

Thank you so much everyone. So far, I am handling everything pretty well. No tears shed yet. :) I appreciate all the support and I will definitely be sticking around. I know I have a ton of questions that still need answering, some whining and complaining to do, and of course, to offer my support and advice when I can.

I'm greatful that in May my Military GP mentioned those 2 words, "Multiple Sclerosis". Although at the time, I thought he was a complete idiot and I wanted to kick his ass for putting me through so much hell worrying over something I probably didn't have. But he was right, and I am happy to have discovered it early (as my Doc said) then to be experiencing real troubles and having no idea where to go.

I guess I owe him a "Thank you". Maybe. :wink:
October 29, 2009 - Dx with RRMS
June 22, 2010 - Dx's changed to Devic's (NMO)
January 4, 2011 - Dx w/Syringomyelia T4-T9, Migraines, and Possible MS (again - long story)
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Postby joew » Sat Oct 31, 2009 4:47 am

Hello again. I am sorry on the one hand that we have become friends this way..but, on the other...now you know..and we are m.s. friends for life..Can tell you are a strong soul..I believe you will become even stronger as time marches on..No matter what comes before us...what a wonderful world....Joe
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Postby CRHInv » Sat Oct 31, 2009 7:35 am

LA, So sorry for the news, but so glad you have found this wonderful place to help you get through it. I am still pretty new at this too. I want you to know, that even just eight months out from symptoms and six months out from diagnosis I am much better, mentally. I feel like I can connect here. There is so much that my family doesn't know. I can't add to the helplessness they feel. Here, people understand. Sometimes, I read someone elses story that I could have written myself and it makes me feel better to hear how they deal with their issues.
Beth
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
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Postby jimmylegs » Sat Oct 31, 2009 2:59 pm

sorry about the news, LA. we're all here for you.
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Re: Diagnosis Is In

Postby BBen » Sun Nov 01, 2009 9:23 am

LoveActually wrote:
I do have MS and was given 4 huge binders full of info for each CRAB drug.

More later.


Just got the binders last week myself. For nice, pretty, full-color books, they can sure get nasty towards their competitors! I have stopped referencing them and come to forums like this for info instead because when I read each one, I'm convinced that's the right one for me--until I read the next one. Plus, I like actual user experiences, rather than studies that can be administered and released to say just about anything.

Sorry about your diagnosis. But Glad you caught it early on. Hang in there LA.
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