Calling all MS sufferers that have purpling of the legs/feet

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worse

Postby Boopieup » Sun Nov 22, 2009 10:14 am

It has gotten worse in a month. I was told by one surgeon that "it's MS caused, most likely, and you need to wear compression hose and walk".
I can't do either anymore.
It has spread from being a from the knee down thing to going above the knees and now the purple part is in the fingers. I wouldn't care what color my body turns to if it just wouldn't hurt or swell.

This whole thing stumps every one of my doctors. I get the response "I don't know" a lot.

At this point my only hope is Dr. D. at Stanford. It's getting to where it is a waste of my time and energy to go see any of my doctors anymore. All I get is the same "I don't know" from them every visit.

:(
DX w/ RRMS 2004. Self DX PPMS. I don't sit here feeling sorry for myself; I just sit here. View my Blog--history and current events in my life at
http://boopieupsmsjourney.blogspot.com/
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Re: worse

Postby Alica » Sun Nov 22, 2009 3:41 pm

Boopieup wrote: it is a waste of my time and energy


I can relate. It's very frustrating.
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Re: Calling all MS sufferers that have purpling of the legs

Postby NHE » Mon Nov 23, 2009 12:45 am

Boopieup wrote:It has gotten worse in a month. I was told by one surgeon that "it's MS caused, most likely, and you need to wear compression hose and walk".
I can't do either anymore.


Hi Boopieup,
This is just an idea, but have you ever tried or considered using a Theracycle? These are like exercise bikes but they have a motor which drives the pedals. It might help improve your circulation. If you search the forum, I think that there have been a couple of people that have discussed them in the past.

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