This Is MS Multiple Sclerosis Community: Knowledge & Support

So many of you might think “that’s not a problem. What’s she complaining for?”
I have a DX of MS of about 4 years. It has hit me hard and fast. I was riding horses 4 years ago, and now I’m in a wheelchair. I’m 36.
My problem, and excuse the bluntness and TMI, is that I could have sex 24/7. I have no problems in the arousal area or wetness area. In fact, the 4 days that I’m very satisfied by my husband is just not enough. He says he is a once an every 24 hour guy and that’s that. I understand that and don’t bother him about this. I’ve been like this since I’ve been with my husband anyway. I can’t turn this off. Sometimes it’s worse than others.
This is a female problem and I don’t know if it is related to MS or not. I do get a huge endorphine kick when the big O happens, and it happens multiple times thanks to my husband’s help. I do take LDN 3 mg nightly. I don’t know if my body is getting addicted to the endorphine rush because it makes me feel so much better or what. My husband says I’ve been like this for 4 years that he’s noticed.
Here’s my question , and sorry for the bluntness again. Where can I buy online a really good handheld showerhead that has a massage setting that sends a single spray that allows for really good water pressure? Everything else is too tiresome to use, and I really need to leave my husband alone. There’s nothing that I know of that is safe that will reduce my libido. I am anti-drug anyway.

Boopieup ummmmmm.... You have let me speechless......

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Hi Boopieup. Good ol' LDN...been there, done that.

Or maybe that's part of it anyway. I always want to suggest LDN as a mild, safe option for those with sexual problems, but in the past, the LDN skeptics tended to hoot the idea off other forums I've posted in...like LDN is some sort of aphrodesiac, psychedelic high. It's really not.

I found the good effects from LDN very subtle, though -- so subtle that they might go unnoticed by those taking other heavy, powerful meds. In fact, I was taking a BP med then that noted low libido and fatigue as side effects. During my One Year Experiment on LDN (with daily charts), I found not so much an increased craving for it, but only that the big O came easier, quicker, and with more intensity. I didn't find it quite as overwhelming as you do, so my BP med may have balanced it out. Since I took my job as an investigative pseudo scientist seriously, however, I did regular experimentation along those lines, gamely thinking, "Let's see if I can make it happen even when I'm feeling this crappy!... Yep, I sure can."

I'm no longer on LDN, and still have no problems in that area. And I consider it a basic part of my overall health and good humor. But, like you, I sometimes wonder whether MS has played any part in my increased sensitivity and thorough enjoyment of it. You know, maybe something about the rush being able to elevate the spirit in spite of the body's limitations. And I love to smile. Dunno.

But then, I've also lived with MS for 30 + years, treating it pretty much the opposite of the accepted wisdom.

Sorry I have no specific suggestions, but the showerhead idea is good. Just look for one with an adjustable stream... Hope you find the perfect tools.

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Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS or MS symptoms except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)

At least MS has not taken that away from you

Hubby says I've been like this for 4 years. Maybe it has something to do with the woman hitting her sexual peak at 32 thing?? I dunno. Maybe that's when I finally got the big O thing down pat and hubby took notice. It's at the point where the big O for me takes no effort at all. He thinks it's because he's gotten in better physical shape and that could be very well part of it.

I've been on LDN 3 mg since Feb. '09. I don't take anything else prescription-wise. I haven't really noticed the LDN making a difference in the libido area. It does help my legs feel better. From one day taking it to another day forgetting to take it, there's a 100% difference in my leg pain--tolerable to miserable.

Actually, from the time I was 15, and found out about boys and all that stuff, I've always had a huge appetite for sex. I wasn't a slut don't get me wrong. It seems that now it is out of control and the only way to deal with it is to relieve it at the same time getting the endorphine kick. I really don't know what else to do. I try to get my mind off of it by reformatting my computer a million times a month, but then my mind always comes back to...well, you know. Since I'm at home and don't go anywhere or have paid TV or high speed Internet, there's not a whole lot that keeps my attention. Boredom does set in.

I am thankful that I haven't lost that one thing while losing lots of other stuff no thanks to MS. Maybe subconsciously I'm not wanting to lose it so my body is working harder at keeping that going. An M.D. told me recently "if you don't use it, you'll lose it". I'll be damned if I lose the libido, but maybe if it could get turned down a little geesh.

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DX w/ RRMS 2004. Self DX PPMS. I don't sit here feeling sorry for myself; I just sit here. View my Blog--history and current events in my life at
http://boopieupsmsjourney.blogspot.com/

Well I can tell you, MS has taken my "Libido" from me. It's to the point now that it has affected my marriage, possibly to the point of no return. Sounds like I might have to try and push my doctor to prescribe me some LDN. Last time I asked for it though, he told me it was not available here in the U.S. But, I know different.

BTW, my tounge is still sore!

Bubba:

I hope your tongue feels better soon. I've bit down on mine a couple of times in the last six months. That hurts. Now I'm super wary when I eat or talk of where it is at all times. Needless to say, I don't talk or eat as much as I used to.

_________________
DX w/ RRMS 2004. Self DX PPMS. I don't sit here feeling sorry for myself; I just sit here. View my Blog--history and current events in my life at
http://boopieupsmsjourney.blogspot.com/

Considering the subject of this thread, I totally misunderstood that comment...until i read his other thread.

Boopieup - Get a hand held Waterpik Shower Massage and try the different settings at a low water force. If all are still too intense, the end can be unscrewed completely, where it becomes just a hose, and try again different "velocities" of water.

I am lucky enough so far to have not lost sexual function and to be brutally honest it is the only time I feel good in my own body since the onset of MS. I don't think it's an increase in libido - feeling so lousy all the time makes me want to do something I know always makes me feel good MORE.

Sorry, no demos. You may all close your mouths now

I have found this thread very informative. Thank you everyone. Anyone else???

For guys that might have the same problem, maybe it's just a matter of finding the right doctor:

http://abcnews.go.com/Entertainment/Int ... id=9095015

Now that's what I call research!

Wendigo:

Thanks for that bit of advice. I have a WaterPik, but it's not the right model. I'll have to look into other models.

I learned something the other day. Not all PVC rolling shower chairs work or hold up. The one I bought was rated for 400 lbs. I'm a big chick, but not anywhere near that big. The chair I bought online broke anyway and I ended up on the floor. It's a good thing I'm not on coumadin at the moment.

So this is MS and me trying to find a rolling sturdy shower chair (with the cutout seat) and a decent showerhead just so I can freakin' feel a little better. %^@&@!

_________________
DX w/ RRMS 2004. Self DX PPMS. I don't sit here feeling sorry for myself; I just sit here. View my Blog--history and current events in my life at
http://boopieupsmsjourney.blogspot.com/