This Is MS Multiple Sclerosis Community: Knowledge & Support

I am fricken SICK of biting my tounge. I bit it so hard three different times tonight, that I can hardly chew anything. Does anyone else have this problem? If you do, how do you deal with it? I would rather be hit by a truck than to bite my tounge! This sh!t hurts
It is not an everyday problem, but about once every two months I go through this...

A few weeks ago while I was in hospital having a Rituximab infusion I was sharing a room with a fellow with Guillain-Barré Syndrome. He complained of just this same thing. He said that a mouthwash of very cold, strong, black tea helped enormously stop any ulcers and help with any pain. And, searching it just now, he's not alone in recommending this..

Perhaps he has it slightly worse than you though, I think he said it happened more than a few times a week.

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Apologies for my terrible username. I never thought I'd use the forum much when I registered..

Appreciate the response.. That's definately good information!

Bubba,

Are you asking this because you think it might be related to the MS?

The reason I ask, is that I've been noticing recently that I seem to be biting my tongue more. Don't know if this is coincidence. Regardless, when i do it, I try sucking on ice cubes (popsicles would probably work just as well). This seems to numb the pain and reduce the swelling.

Ten-four... My first neuro asked me several times if I had been biting my tounge and or gums? So I assumed it was MS related...

heya, the only thing i can come up with from my angle, is a bit of sensory ataxia (loss of position sense).

ataxia has been linked in research to vitamin E deficiency.

when i had my most remarkable recovery post dx attack, it was on a megadose regimen involving lots of b-complex, lecithin, and vitamin E.
on day 3 my position sense returned.

i did not have any testing done for vitamin e so i don't know for sure what happened. i also don't know if the problems i had with my hand are at all similar to what you're going through with your tongue...

something you could try is eating lots of sunflower seeds and using sunflower oil for salad dressing. if you choose to go the supplement route you could take vitamin e but make sure it is an E8 complex - regular vit E supplements are alpha tocopherol, and taking that form alone drives down your beta tocopherol (a potent cancer fighter).

the regimen i was on was quite high therapeutic doses, 800IU four times a day. now i usually take 400IU E8 complex per day plus use sunflower oil and seeds on my salad at suppertime.

just a thought, don't know if it's relevant...
JL

Hey JL I will look into vitamin E defficiency it may answer some questions.
Hope yr well.

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Hugs to every single one of you I have and will meet on this site. Whether I end up with a diagnosis or not it will have been a pleasure knowing you all via this site. Take care now and forever. <3

hi jules, sounds like a plan, and i'm doing very well thanks