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 Post subject: Anyone Else??????
PostPosted: Sat Nov 14, 2009 10:09 pm 
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I am fricken SICK of biting my tounge. I bit it so hard three different times tonight, that I can hardly chew anything. Does anyone else have this problem? If you do, how do you deal with it? I would rather be hit by a truck than to bite my tounge! This sh!t hurts :twisted:
It is not an everyday problem, but about once every two months I go through this... :oops:


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PostPosted: Sun Nov 15, 2009 6:44 am 
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A few weeks ago while I was in hospital having a Rituximab infusion I was sharing a room with a fellow with Guillain-Barré Syndrome. He complained of just this same thing. He said that a mouthwash of very cold, strong, black tea helped enormously stop any ulcers and help with any pain. And, searching it just now, he's not alone in recommending this..

Perhaps he has it slightly worse than you though, I think he said it happened more than a few times a week.

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PostPosted: Sun Nov 15, 2009 5:59 pm 
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Appreciate the response.. That's definately good information!


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PostPosted: Sun Nov 15, 2009 6:14 pm 
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Bubba,

Are you asking this because you think it might be related to the MS?

The reason I ask, is that I've been noticing recently that I seem to be biting my tongue more. Don't know if this is coincidence. Regardless, when i do it, I try sucking on ice cubes (popsicles would probably work just as well). This seems to numb the pain and reduce the swelling.


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PostPosted: Sun Nov 15, 2009 8:27 pm 
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patientx wrote:
Bubba,

Are you asking this because you think it might be related to the MS?



Ten-four... My first neuro asked me several times if I had been biting my tounge and or gums? So I assumed it was MS related... :?:


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PostPosted: Sun Nov 15, 2009 8:41 pm 
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heya, the only thing i can come up with from my angle, is a bit of sensory ataxia (loss of position sense).

ataxia has been linked in research to vitamin E deficiency.

when i had my most remarkable recovery post dx attack, it was on a megadose regimen involving lots of b-complex, lecithin, and vitamin E.
on day 3 my position sense returned.

i did not have any testing done for vitamin e so i don't know for sure what happened. i also don't know if the problems i had with my hand are at all similar to what you're going through with your tongue...

something you could try is eating lots of sunflower seeds and using sunflower oil for salad dressing. if you choose to go the supplement route you could take vitamin e but make sure it is an E8 complex - regular vit E supplements are alpha tocopherol, and taking that form alone drives down your beta tocopherol (a potent cancer fighter).

the regimen i was on was quite high therapeutic doses, 800IU four times a day. now i usually take 400IU E8 complex per day plus use sunflower oil and seeds on my salad at suppertime.

just a thought, don't know if it's relevant...
JL


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PostPosted: Mon Nov 16, 2009 4:00 am 
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Location: AUSTRALIA, SUNNY QLD
Hey JL I will look into vitamin E defficiency it may answer some questions.
Hope yr well. :wink:

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PostPosted: Mon Nov 16, 2009 6:12 am 
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hi jules, sounds like a plan, and i'm doing very well thanks :)


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