This Is MS Multiple Sclerosis Community: Knowledge & Support

Our ErikaSlovakia went through this same procedure. Check it out.

http://www.ctv.ca/servlet/ArticleNews/s ... ?s_name=W5

alica so did cheerleader's hubby jeff - the ones from california that were interviewed for the show

Thanks for pointing that out to me.

I saw them on the show this afternoon. I didn’t make the connection until now. Wow. What an amazing story. There is hope after all. I’m very grateful for this forum.

Yup...that's us, with our son and dog, too. Jeff was really relieved with the quality of the program, the intelligence of the questions and the thoroughness of the journalists. We don't always see that in the states, so we were really pleased with how Avis and Elizabeth told the story- Go, Canada! Erika's tale is incredible, too, Alicia. Hope the world media looks into CCSVI some more-
Joan/cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

My husband and I watch the CTV-W5 story here in Canada last night and were very excited to hear about this new information about Dr. Zamboni's new treatment in Italy. I hope that this Liberation treatment will offered here in Canada very soon as well because I have been suffering with RRMS since 2005 and this past year was particularly debilitating for me with my left leg and arm having limited movement and use.

Susan

welcome susan whereabouts in canada are you? i'm near hamilton ontario...

Joan, your husband is very lucky to have you. I really hope that Jeff is going to feel the benefits of this procedure for a long time. Best wishes to you and your family.

Yes, W-5 and The Passionate Eye make decent and well researched documentaries.


Hi suenz.

Today I’m going to see my family physician and introduce her to this new miracle. We have to start somewhere.


Jimmylegs, if I recall correctly, there is a doctor in Hamilton who is already looking into this matter. Lucky you. I’m on the West Coast.

I am from Ottawa ON and I don't know if or when I should mention this liberation treatment to my family doctor yet. It certainly seems like its worth a try though.

I am surprised & disappointed with the statements released from MS Societies in both Canada & the US. They actually want to discourage any MS patients from pursuing or looking into this treatment all together? You think they would be jumping on this wanting to learn more about as soon as possible. Is doesn't make any sense that they don't seem that interested or slightly encouraging at all even if there isn't enough known about it yet.

I suppose the new treatment, if absolutely proven to be the new discovery in solving MS and how it is treated in the future would go against all the claims that have been documented on MS up until now as been classed as an autoimmune disease would discredit a lot of doctors or scientists.

I guess in is up to MS patients to speak out now and help move this discovery forward.

ummm......probably not. I don't think they will be too supportive and encouraging of a fix and we all know why $$$$$.

I honestly think we all need to push it and be assertive self advocates.
I will be posting to the CCSVI thread about how to get the ball rolling in Canada when I pull my thoughts together.

See you on the CCSVI thread....................

[quote="suenz"] I am surprised & disappointed with the statements released from MS Societies in both Canada & the US. They actually want to discourage any MS patients from pursuing or looking into this treatment all together? /quote]

I agree, but I wasn’t surprised. When we look at the big picture, Miss_Feisty is sooo right. It all comes down to politics and money. Big pharmaceutical companies don’t want healthy people. This way they keep feeding us with cheap poison and we gladly pay big $$$ and live in illusion that it’s good for us. They are happy and rich. We’re getting poorer and sicker. Because we pay them, they have enough money to control politics. It’s a vicious circle. But it takes rebellious individuals to make small victories happen. So let’s roll.

I have high hopes. My family physician is young, very bright, open to new things and I get the feeling that she really cares. She is from Europe and that gives me hope that she will look into this with an open mind.

[quote="Miss_Feisty"] how to get the ball rolling in Canada when I pull my thoughts together.[quote]

I believe that the ball will roll in Canada sooner than in USA. Our politicians are not corrupt as much as US officials. Our regulations are still in effect, if you know what I mean. Without getting too deep into politics…I’m getting my news from Jeff Farias and Mike Malloy shows. Democracy now with Amy Goodman is excellent as well. TV news is not news.

See you on the CCSVI thread....................

I also agree with you - you expressed it in words that I did not address at all. I am so glad to hear your optimistic approach!
I think we should fight for this in a rebellious way and take a stand at least and make this a victory for a treatment that sounds very promising.

Yes I am also very curious to see what my family doctor thinks about all this too!

cheers
Susan

alica, all the sites for that particular testing program with a branch in at mac in hamilton are full, or so i understand.

i have been toying with the testing idea with my family doc over the last few months, but now that the W5 thing is out there looks like i'll be doing things the same as you will have to out west... regardless of mcmaster being where my neuro is...

you can enter your personal info on http://www.ms-mri.com/ download the testing protocol and take it to your own neuro, at least it's something to get started on, even at a distance

JL

Hey Everyone...My name is Shelly I just came across this group from facebook I belong to another websight based on MS Patients...I am also very excited on the " new " release and yet I went to my family dr as the dr that was on W5 stated he needed to see the tests in order to read them so I needed to get these tests so I go to ask and guess what she said no..there is a shock so she suggested I try to get into a " trial basis " and to get in touch with my neuro to put myself on the list so then I call guess what she said this is very new and it is research on one dr and no?? I am sorry I pay you to take care of me and this is my body we are playing with ...so now gotta look into " other " options possibly thinking of going into the states to have it done and just pay for the test to have the Hamilton Dr read them..anyone else have any ideas??

sj, follow the instructions at the www.ms-mri.com site and you can start taking action.

input your information, download the research protocol, and take the info to your docs.

once you have some buy-in from your doctors and they have conducted some testing on you, maybe the rush on dr. haacke will have died down a little and he will be able to receive your data.

good luck,
JL

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my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
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www.whfoods.com, www.nutritiondata.com