This Is MS Multiple Sclerosis Community: Knowledge & Support

I've been on these trials for a month now and I thought others might want to know about it. You can find information about the 'product' on this site- just type Caprivax into the search section.
Don't ask how I got to hear about it - friend of a friend type of thing.
Anyway from my home in Sheffield (UK), we - my partner Lorraine and I -have had to travel the 500 mile round trip to Kent for the first few injections (once a week). Last week the doctor gave me three weeks supply so I could self medicate.
On our first visit we met a number of MS sufferers, most of whom reported significant improvements in their conditions including one woman who was 'chair bound' before beginning the treatment. The organisation involved also produce a DVD featuring up to twenty people whose lives have been turned around by this new wonder treatment.
I would like to report changes in my condition but nothing as yet. Early days? We shall see. [/quote]

This is absolutely fantastic information. Many thanks for sharing it and please keep us udpated on your results.

I have just been accepted onto a separate trial for the drug company alongside the official clinical trial (no placebos ).

Aikika, did you have to go to Chislehurst in Kent? If so, our paths may cross in the future. My first appointment is at St George's in Tooting in about three weeks' time.

As Caprivax serum is made from goat's blood, there are quite a few jokes being made at the moment about me having to watch that I don't start to eat the carpets and wallpaper, etc. You can imagine

Ann

Hi Anne

Yes to Chistlehurst, but somehow I've bypassed Tooting.
My next appointment is on Friday 19th March at midday.

At the moment I feel a little reluctant to discuss all the whys and wherefores as Daval seem to want to keep all of this under wraps. Something to do with patents and intellectual property. I was told at one point that I would have to sign some sort of disclaimer, but it never happened.

As for the goat thing, my friends are keeping a watch on my chin and wouldn't be at all surprised if the horns (which they've always suspected) started to show.

Good luck to you

Petar.

_________________
The growing good of the world is partly dependent on unhistoric acts.

Diane

Thanks for your good wishes and in answer to your question the injections are sub-q which is just as well as I'm not keen on intra-muscular .

Ann

Sorry, time to leave the board.

-finn

Hi Finn

Thanks for the info, but I'm soooo confused now ...does this mean that we will no longer have "Caprivax" but WILL HAVE "Aimspro"?? Do you know the date of the article you posted??

I looked on another site(and I don't remember what it was ), and found that veterinarians have been using this for some time, as a vaccine for goats!

Anyway, thanks for the site, and any info you, or anyone else can give me on this will be greatly appreciated, as I don't seem to find out much about it in the states .

Looking forward to hearing from you-be well, and thanks again!

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Every journey begins with a single step...Diane

Sorry, time to leave the board.

-finn

I am trying to get more informaiton for my Mother on Aimspro who is a MS Sufferer - I would like to know if you can buy direct and if so how. I have looked at the Daval Website but no joy ...[/u]

Johanna,
If you find out, please let me know...I've done some searches on the net, all to no avail...

Sorry, time to leave the board.

-finn

Thank you for your response it was very kind of you to take the time. I am based in England and I've heard of Dr Davis but thank you for the name of Dalgleish - very handy to know - I will definitely go down that route

Well thank you once again and if you or anybody else can enlighten me further please do - I need enlightening!